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Help and support for retinoblastoma

Where to find help and support

If your child has retinoblastoma, your specialist treatment team will be there to support you and your child throughout treatment. They will also be able to give you information about local support services you may find helpful.

There are also national cancer charities that can offer support and information about retinoblastoma.

Childhood Eye Cancer Trust

Information and support for families affected by retinoblastoma.

Children's Cancer and Leukaemia Group

Information and resources for parents and carers of children with cancer.

Grace Kelly Childhood Cancer Trust

Information and support services for families affected by childhood cancer.

Macmillan Cancer Support

Information and support for anyone affected by cancer.

Cancer Research UK

Information and support for anyone affected by cancer.

Page last reviewed: 2 May 2023
Next review due: 2 May 2026