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Causes of retinoblastoma

Main cause of retinoblastoma

Retinoblastoma is often linked to a change in a gene that controls the growth of the eye.

The change in this gene means cells in the back of the eye (retina) can grow uncontrollably.

The changed gene may be passed to a child by their parents, or the gene may change as a child grows.

Screening for retinoblastoma

It's not possible to prevent retinoblastoma, but screening tests can pick it up early.

If your child has a close relative who had retinoblastoma, ask your GP or midwife about screening tests. The tests can be carried out from birth.

Page last reviewed: 2 May 2023
Next review due: 16 May 2026