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Carer benefits and legal services Prader Willi Syndrome Association UK

Contact us

About

We are a registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS), their families, carers, and the professionals who work with them.

Opening times

9am to 5pm Monday to Thursday, 9am to 1pm Friday – answerphone active for the rest.

Access

Office open 9am - 5pm Monday - Friday, lift to first floor only

Catchment area

This is a national helpline

Target group

Anyone with an interest in Prader-Willi Syndrome

Further information

Charity Number:- 1155846

Referral method

Self referrals or referrals from any professional

This information was supplied by Serco Global Services on 1 April 2025.