Carer benefits and legal services Ectodermal Dysplasia Society (Eds)
Contact us
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Address
Unit 1 Maida Vale Business Centre
Leckhampton
Cheltenham
Gloucestershire
GL53 7ER
About
Ectodermal Dysplasia Society (EDS) support individuals and families affected by ED, and promote awareness and understanding of ED.
Catchment area
Nation-wide
Target group
General public and professionals
Further information
Someone to talk toIf you or a member of your family has recently been diagnosed with ED, you may wish to speak directly to someone who understands your situation and can reassure and advise you about the future. If you would like to talk about any aspect of ED, please call Diana Perry on 01242 261332. Diana works on a voluntary basis for the charity and so, if she is not in the office when you call, please leave a message and she will call you back as soon as possible. Alternatively, if you prefer to email Diana, she can be reached at diana@edsociety.co.ukEDS can help by:• obtaining answers from Medical professionals to members' specific questions • liaising with Head Teachers, Health Authorities and medical professionals • assisting families get the right care for their child in schools, such as full or part time carers, fans, air-conditioning, etc. • assisting families to obtain Disability Living Allowance, Disability Carers Allowance; assisting in the Statementing process and helping with appeals and tribunals • supporting members in their fundraising • putting people in touch with each other if requested • finding pen pals for the younger members • assisting families obtain information regarding ante-natal testing
Referral method
Self-referral
This information was supplied by Serco Global Services on 1 April 2025.