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Carer centres and services Aniridia Network

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About

A support group and charity for people affected by aniridia: those who have it plus their family, carers, doctors, educators and other support givers.

We want all these people to be hopeful, confident, supported and well informed regarding aniridia. We work towards this by:

§ creating a positive, supportive network of families, individuals and professionals to share ideas, experiences and give emotional support

§ providing information, about aniridia, the related conditions and their implications

§ providing information on education and the welfare systems and life skills relevant to aniridia and related conditions

§ promoting research into the causes, effects, treatment and management of aniridia and related conditions and then publicising the results.

We provide:

· Newsletters: Articles about the latest aniridia issues, including medical and personal stories.

· Enquiries service: Help from experts in medical, education, disability rights and daily living issues in relation to aniridia.

· Befriending: Buddies who have ‘been there’ to provide support.

· Events: Conferences and meet-ups

Opening times

Please contact for more details about specific groups or events.

Catchment area

National

Target group

People with aniridia and their families.

Referral method

Self-referral

This information was supplied by Serco Global Services on 30 May 2025.