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Support for families and carers of people with Down’s syndrome

Supporting someone with Down's syndrome can be both rewarding and challenging.

Getting support if you care for someone with Down’s syndrome

If you need help, or just want someone to talk to, there's lots of support available.

Speak to parents and families

It can help to speak to other parents and families who know how you're feeling.

You can do this by:

  • getting in touch with people on forums and social media
  • going to a support group – ask your midwife or health visitor about local support groups
Find support groups near you

Speak to a charity

You can get advice from charities.

Down's Syndrome Association

For people with Down's syndrome, their parents and carers.

Find out more about resources, information and training at the Down's Syndorme Association.

Down Syndrome UK

For families and carers of children and young people with Down's syndrome.

Mencap

For people with learning disabilities and their families.

Contact

To support and bring together families with disabled children.

Page last reviewed: 27 October 2026
Next review due: 27 October 2029