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Carer centres and services Rett UK

Contact us

About

Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.

We are the only charity in the UK providing support to people living with Rett syndrome.

Rett UK founded in 1985 round a kitchen table by Yvonne Milne MBE.

Since then we have grown to be the leading provider of Information, Advice, Guidance and Advocacy support to not only families but also education, health & social professionals new to the world of Rett syndrome.

Rett UK supports our families through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organise support groups and have a dedicated parental contact network.

We are a small team working on a national level. We receive NO government funding and rely entirely on donations and grants to fund our work.

Opening times

8.30 am - 4.30 pm Monday - Friday

Catchment area

This is a national helpline

Target group

Anyone

Referral method

Self referral

This information was supplied by Serco Global Services on 1 April 2025.