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Cjd Support Network

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About

The CJD Support Network is the only patient support charity for all strains of CJD and prion disease. We provide practical and emotional support to families affected and for those people who are told that they are at heightened risk of CJD through genetics, blood or surgical instruments.  We offer also information and community connection, and support fundraising and awareness raising.

Opening times

08:30-15:30 on Tuesdays and 11:00-18:00 on Wednesdays and Thursdays (answer machine when busy/outside opening times)

Catchment area

This is a national helpline

Target group

Anybody who is concerned or affected by CJD or prion disease of any kind

Referral method

Self referral or through their clinicians

This information was supplied by Serco Global Services on 17 July 2026.