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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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Dyspraxia Foundation
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Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
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The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
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Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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Multiple Sclerosis Trust
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Tel: 01462 476700
Spirella Building
Bridge Road
Letchworth
Hertfordshire
SG6 4ET
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The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people with MS to live their lives to th...
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Anyone affected by MS, either personally or professionally
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Crohn’s & Colitis UK
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Tel: 0300 222 5700
1 Bishops Square
Hatfield Business Park
Hatfield
Hertfordshire
AL10 9NE
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Crohn's & Colitis UK is the national charity to help inform anyone affected by Crohn’s and Colitis including friends, family, medical professionals and even employers.
The services provided include helplines, a website, information booklets and a network of local groups. The charity raises aware...
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The service is available to anyone who might need it.
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Psoriasis And Psoriatic Arthritis Alliance (Papaa)
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Tel: 01923 672837
Unit 3 Horseshoe Business Park
Lye Lane
Bricket Wood
St Albans
Hertfordshire
AL2 3TA
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Principal resource of information and help for people with psoriasis and psoriatic arthritis in the UK.
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Anyone affected by psoriasis or psoriatic arthritis who need advice and information.
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National Organisation for FASD
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Tel: 020 8458 5951
310 Mill Studio
Crane Mead
Ware
Hertfordshire
SG12 9PY
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The National Organisation for FASD is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for children, adults, families, carers and communities affected by Foetal Alcohol Syndrome (FAS) and Foetal Alcohol Spectrum Disorders (...
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Families, Carers, Health professionals
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The MedicAlert Foundation
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Tel: 01908 951045
Suite 1
Liscombe South
Liscombe Park
Soulbury
Buckinghamshire
LU7 0JL
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We are a registered charity providing a life-saving identification system for individuals with hidden medical conditions and allergies. This takes the form of body-worn bracelets or necklets (known as MedicAlert Emblems) bearing the MedicAlert symbol on the disc and supported by a 24 hour emergen...
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Individuals with hidden medical conditions and allergies, their carers, general public, and health care professionals
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Cardiomyopathy Association
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Tel: 01494 791224
Unit 10, Chiltern Court
Asheridge Road
Chesham
Buckinghamshire
HP5 2PX
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The charity provides information and support to families affected by the heart muscle disease. It holds information days around the country, has a network of people affected by the disease who provide one-to-one telephone support, has support groups around the UK and a website packed with inform...
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