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Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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Fledglings
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Tel: 0845 458 1124
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Wenden Court
Station Approach
Wendens Ambo
Saffron Walden
Essex
CB11 4LB
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Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.
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Carers, Parents, Professionals, General Public
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Fragile X Society Essex
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Tel: 01371 875100
The Chestnuts
4 Stortford Road
Great Dunmow
Essex
CM6 1DA
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The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome.
The Society's Aims are to:
- provide support and information to fragile X families from those who share and understand their concerns and needs
- educate and inform the public an...
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Those who care for or have relatives affected by Fragile X Syndrome and professionals who work with them
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Multiple Sclerosis Trust
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Tel: 01462 476700
Spirella Building
Bridge Road
Letchworth
Hertfordshire
SG6 4ET
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The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people with MS to live their lives to th...
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Anyone affected by MS, either personally or professionally
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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Dyspraxia Foundation
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Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
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The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
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Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
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National Organisation for FASD
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Tel: 020 8458 5951
310 Mill Studio
Crane Mead
Ware
Hertfordshire
SG12 9PY
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The National Organisation for FASD is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for children, adults, families, carers and communities affected by Foetal Alcohol Syndrome (FAS) and Foetal Alcohol Spectrum Disorders (...
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Families, Carers, Health professionals
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Hourglass (Safer Ageing)
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Tel: 0808 808 8141
Office 8
Unit 5, Stour Valley Business Centre
Brundon Lane
Sudbury
Suffolk
CO10 7GB
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Hourglass was established in 1993 by a group of practitioners from health and social care, and by academics and representatives of the voluntary sector who were concerned about the lack of information and assistance for those who were abused or were at risk of abusing. And today, we address abuse...
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To operate a helpline giving confidential information and emotional support to victims and anyone concerned about elder abuse
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Children's Heart Federation
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Tel: 0300 561 0065
Suite 12
The Centre
Lakes Industrial Park
Braintree
Essex
CM7 3RU
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The Children’s Heart Federation (CHF) is the leading UK children’s heart charity and works with individuals and organisations concerned with children and young people with health and educational needs due to acquired or congenital heart conditions.
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Carers of children with heart problems.
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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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