Address & contact details |
Information supplied by |
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Multiple Sclerosis Trust
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Tel: 01462 476700
Spirella Building
Bridge Road
Letchworth
Hertfordshire
SG6 4ET
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The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people with MS to live their lives to th...
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Anyone affected by MS, either personally or professionally
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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Dyspraxia Foundation
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Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
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The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
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Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
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Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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Fledglings
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Tel: 0845 458 1124
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Wenden Court
Station Approach
Wendens Ambo
Saffron Walden
Essex
CB11 4LB
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Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.
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Carers, Parents, Professionals, General Public
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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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National Organisation for FASD
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Tel: 020 8458 5951
310 Mill Studio
Crane Mead
Ware
Hertfordshire
SG12 9PY
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The National Organisation for FASD is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for children, adults, families, carers and communities affected by Foetal Alcohol Syndrome (FAS) and Foetal Alcohol Spectrum Disorders (...
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Families, Carers, Health professionals
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Crohn’s & Colitis UK
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Tel: 0300 222 5700
1 Bishops Square
Hatfield Business Park
Hatfield
Hertfordshire
AL10 9NE
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Crohn's & Colitis UK is the national charity to help inform anyone affected by Crohn’s and Colitis including friends, family, medical professionals and even employers.
The services provided include helplines, a website, information booklets and a network of local groups. The charity raises aware...
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The service is available to anyone who might need it.
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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