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Colostomy UK
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Tel: 0800 328 4257
100 Berkshire Place
Winnersh
Wokingham
Berkshire
RG41 5RD
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The primary role of the Colostomy UK is to represent the interests of people with a colostomy. We are experts in living with a colostomy and that experience is available to all colostomates, via personal contact with our volunteers.
We are here to provide support, reassurance and practical infor...
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People with a colostomy, their families and carers
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Smith-Magenis Syndrome (SMS) Foundation UK
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Tel: 0300 101 0034
18 Suthmere Drive
Marlborough
Wiltshire
SN8 3TG
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Our Vision is that every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working wi...
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Heads2Gether
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Tel: 0800 023 4550
ENT Department
The West Wing LG1
The John Radcliffe Hospital
Oxford
Oxfordshire
OX3 9DU
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We offer support to anyone affected by head and neck or mouth cancer. We run coffee mornings and a packed schedule of social events, an opportunity to meet and talk to others who have already been treated for the disease.
We offer telephone and face to face support using trained former patients...
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People Affected by Head & Neck Cancer.
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It Can Help (Itch) National
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Tel: 0800 269 545
Members Groups
1st Floor, Block D, North Star House
North Star Avenue
Swindon
Wiltshire
SN2 1FA
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IT Can Help was founded in 1994 as a programme of BCS (British Computer Society), The Chartered Institute for IT. IT Can Help offers free computer support to disabled people. Our volunteers make over 1000 visits each year to assist disabled people.
If you have a disability and need IT help, we w...
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The Sleep Apnoea Trust
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PO Box 60
Chinnor
Oxfordshire
OX39 4XE
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The Sleep Apnoea Trust Association (SATA) is a national charity funded by patients and run by patients exists to improve the lives of sleep apnoea patients, their partners and their families. Its website is the best source of up to date sleep apnoea information for adults. The website is constan...
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Data not available
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Hearing Dogs For Deaf People
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Tel: 01844 348100
The Grange (Head Office)
Wycombe Road
Saunderton
Princes Risborough
Buckinghamshire
HP27 9NS
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Nearly nine million of the UK population experience some degree of hearing loss. That's one person in every seven. Over 650,000 of these people could benefit from a hearing dog.
We train dogs to respond to specific sounds which hearing people often take for granted, such as the alarm clock, door...
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Severely and profoundly deaf people; their families; carers; health specialists, etc
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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Heart Uk
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Tel: 0345 450 5988
7 North Road
Maidenhead
Berkshire
SL6 1PE
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At HEART UK we're passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support, a telephone helpline, website and membership scheme.
We're also committed to raising awareness about the risks of high cholesterol, l...
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