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Joubert Syndrome In The Uk
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Tel: 01977 709969
17 Monkhill Mount
Pontefract
West Yorkshire
WF8 1JG
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We are an organisation set up and run by parents and volunteers for families and carers of children with Joubert Syndrome.
We aim to support newly diagnosed families by providing a listening ear from other parents of children with Joubert Syndrome who will have some understanding of how they may...
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Versus Arthritis
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Tel: 0300 790 0400
Copeman House
St Mary's Court
St Mary's Gate
Chesterfield
Derbyshire
S41 7TD
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We are Versus Arthritis. We’re the 10 million people living with arthritis. We’re the carers, researchers, healthcare professionals, friends, parents, runners and fundraisers all united in our ambition to ensure that one day, no one will have to live with the pain, fatigue and isolation that arth...
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Anyone can use our services; anyone who suffers from arthritis, their friends and families or any members of the public wanting to know more. We also provide educational resources and publications aimed at medical professionals.
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SCARD (Support and Care After Road Death/Injury)
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Tel: 01924 562252 (Mon-Fri 9am -5pm)
Helpline number: 0345 1235542 (Mon-Sun 9am - 9pm)
RCM Business Centres
Sandbeds Trading Estate
Dewsbury Road
Ossett
West Yorkshire
WF5 9ND
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We support people that have been affected by road traffic collisions. We offer free face to face counselling for anyone that can reach our offices, we also offer Zoom counselling for anyone that may not be able to get to us.
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Pkd Charity (Polycystic Kidney Disease)
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Tel: 0300 111 1234
Foxhill Close
Langwith Road
Scarcliffe
Derbyshire
S44 6TH
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We are the only charity in the UK dedicated to the concerns of people affected by Polycystic Kidney Disease - PKD - a range of inherited, incurable renal conditions. Our aims are: to provide information, advice and support to those affected by Polycystic Kidney Disease, to fund research into dete...
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VHL UK/Ireland
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47 Tiln Lane
Retford
Nottinghamshire
DN22 6SN
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The purpose of the VHL UK Charity is:
• To raise funds for research into the rare genetic conditions VHL, BHD and HLRCC
• To provide support to people affected
• To provide access to on-line information by links to other support organisations
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People who have been impacted by VHL, BHD or HLRCC
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National Hereditary Breast Cancer Helpline
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Tel: 01629 813000
DE45 1JE
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The National Hereditary Breast Cancer Helpline provides help and information for those concerned about their family history of breast cancer, and also has a useful database of women prepared to share their own experiences with others.
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StepChange Debt Charity
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Tel: 0800 138 1111
123 Albion Street
Leeds
West Yorkshire
LS2 8ER
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StepChange Debt Charity is the UK’s leading debt advice charity. They help over 630,000 people each year deal with their money worries and take back control of their lives. They provide free and impartial advice, online and by phone, as well managed debt solutions and help with budgeting.
Get he...
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Malignant Hyperthermia Unit
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Tel: 0113 20 65270
Malignant Hyperthermia Unit
Room 8.31 / 8.32A Clinical Sciences Building, St James’s University Hospital
Beckett Street
Leeds
West Yorkshire
LS9 7TF
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Information to families and professionals regarding MH. Leaflets, newsletters, annual meetings and foreign translations.
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Stuart Strange Vasculitis Trust
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Tel: 01629 650549
DE4 2DQ
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The Stuart Strange Vasculitis Trust was established, by family and friends, in memory of Stuart Strange who had started raising money for research into Wegener's Granulomatosis.
However it very quickly became apparent that patients with associated vasculitic diseases needed support, and so as i...
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Anyone requiring help and information on vasculitis
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Sturge Weber UK
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Tel: 01422 820408
Milk Hall
Withens Lane
Barkisland
Halifax
West Yorkshire
HX4 0DY
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We provide support and information on different aspects of Sturge Weber syndrome and raise both public and professional awareness of the condition. We also seek to promote medical research into the causes and treatment of this syndrome.
A Family Weekend is organised every eighteen months, when d...
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Sturge Weber sufferers and their families
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