Autism and Asperger syndrome 

Introduction 

Autistic spectrum disorder

An expert explains the different types of autistic spectrum disorder, a condition that affects how individuals interact with the world and other people. She also describes how the condition is diagnosed, and how parents can get the right information and support.

Caring for someone with ASD

Being a carer is not an easy role. When you are busy responding to the needs of others, it can deplete your reserves of emotional and physical energy and make it easy for you to forget your own health and mental wellbeing.

If you are caring for someone else, it is important to look after yourself and get as much help as possible. It is in your best interests and those of the person you are caring for.

Carers Direct has a lot of useful information on health, support and the benefits you are entitled to, and it runs a helpline: call Carers Direct on 0808 802 0202.

Autism and Asperger syndrome are both part of a range of related developmental disorders known as autistic spectrum disorders (ASD). They begin in childhood and persist through adulthood.

ASD can cause a wide range of symptoms, which are grouped into three broad categories, described below.

  • Problems and difficulties with social interaction, such as a lack of understanding and awareness of other people's emotions and feelings.
  • Impaired language and communication skills, such as delayed language development and an inability to start conversations or take part in them properly.
  • Unusual patterns of thought and physical behaviour. This includes making repetitive physical movements, such as hand tapping or twisting. The child develops set routines of behaviour, which can upset the child if the routines are broken.

There is currently no cure for ASD, but there are a wide range of treatments, including specialist education and behavioural programmes, that can help improve the symptoms. Read more about treating ASD.

In England it is estimated that 1 in every 100 children has an ASD and they are more common in boys than girls. Boys are three to four times more likely to develop an ASD than girls.

Types of ASD

The term 'spectrum' is used because the symptoms of autistic spectrum disorder (ASD) can vary from person to person and range from mild to severe.

In very broad terms, there are three main types of ASD:

  • Autistic disorder, sometimes known as 'classic autism'
  • Asperger syndrome
  • Pervasive Developmental Disorder – Not Otherwise Specified (PDD-NOS), which is also known as 'atypical autism'

Autistic disorder

Children with autistic disorder usually have significant problems with language, social interaction and behaviour. Many children with autistic disorder will also have learning difficulties and below-average intelligence.

Asperger syndrome

Children with Asperger syndrome have milder symptoms that affect social interaction and behaviour. Their language development is usually unaffected, although they often have problems in certain areas of language. For example, understanding humour, or figures of speech such as 'it's raining cats and dogs'.

Children with Asperger syndrome usually have above-average intelligence. Some children are skilled in fields requiring logic, memory and creativity, such as maths, computer science and music.

Pervasive Developmental Disorder – Not Otherwise Specified

PDD-NOS is also an autistic spectrum disorder and is a condition diagnosed in children who share some, but not all, of the traits of autistic disorder and/or Asperger syndrome.

Most children with PDD-NOS have milder symptoms than children with autistic disorder, but they do not share the language skills and above-average intelligence associated with Asperger syndrome.

Autism in children

Autism can normally be diagnosed in children around the age of two, although it can be difficult to diagnose as the symptoms will often only become more noticeable as they get older.

See your GP if you notice any of the symptoms of ASD, or you’re concerned about your child’s development. You can discuss your concerns together in depth before deciding whether your child should be referred for a specialist assessment Read more about diagnosing autism.

If your child is diagnosed with ASD, there will be many things to consider as a parent, including coping with day-to-day life at home and choosing the right school. Read more information about coping with your child’s diagnosis in a parents guide to autism.

Autism in adults

Some people with ASD grow up without ever being diagnosed, sometimes through choice, but getting a diagnosis of autistic spectrum disorder (ASD) as an adult can often help them and their families to understand the condition and then work out what kind of support they need.

There are a range of autism-specific services available to help adults with ASD find advice and support, get involved in leisure activities and find somewhere they are comfortable living.

Some adults with ASD may have also have difficulty finding a job due to the social demands and changes in routine that a workplace involves, but support can also help with finding a job to match the abilities and skills of the individual.

Read more about living with autistic spectrum disorder (ASD) as an adult.

Are rates of autism increasing?

The number of diagnosed cases of ASD has increased over the past two decades, but this does not necessarily mean that the condition is becoming more widespread.

Some experts argue that the rise in diagnosed cases may be due to health professionals getting better at diagnosing cases correctly. In the past, many children with an ASD may have been incorrectly labelled as 'slow', 'difficult' or 'painfully shy', and not given the treatment they needed.

Some campaigners believe that the rise in cases is due to the MMR (mumps, measles and rubella) vaccine.

The MMR vaccine has been investigated extensively in a number of major studies around the world, involving millions of children. Researchers have found no evidence of a link between MMR and ASD.

In 2009, one of the country's leading ASD charities, the National Autism Society, released a statement supporting the claim that there is no link between MMR and ASD.

In the US, a compound containing mercury called thiomersal, which is used as a preservative in some vaccines, has also been claimed to cause ASD.

Thiomersal has been extensively studied and no evidence of a link to ASD has been found. Furthermore, thiomersal was removed from vaccines in the US after 1999, yet the rates of ASD have continued to rise.

Read more information about the causes of autistic spectrum disorder (ASD).

Outlook

Children with moderate symptoms who have average or above-average intelligence often grow up to be independent adults with jobs, long-term relationships and children.

Children with more severe symptoms who have below-average intelligence are likely to find it difficult living independently as adults and may need additional care and assistance. However, there is no reason why they cannot enjoy a good quality of life.

Last reviewed: 30/11/2011

Next review due: 30/11/2013

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Comments are personal views. Any information they give has not been checked and may not be accurate.

The lady who cried a lot said on 21 December 2011

I havent been formally diagnosed with it yet, but I realised I had it as soon as my son was diagnosed, I kept thinking "I did that" about everything the doctor was saying. I tried to get diagnosed formally because I want the bullying to stop. I got put in a childrens home after being abused and have been bullied because of it and am still being bullied now. I really would like the bullying to stop so much and I thought if I could get a proper diagnoses and get a piece of paper I might be able to stop them bullying me. The doctor sent me to a clinic but they said they couldnt do the diagnosis there as it wasnt a learning difficulty that I had. I did a self diagnosis twice and both times I got 40 out of 50, it was the Cambridge test. I really wish I could get a formal diagnosis, so that I could make them stop bullying me and calling me a nutter all the time.

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The lady who cried a lot said on 21 December 2011

I get bullied quite a lot because I was abused as a child, I think I was an easy target. I used to cry a lot but dont much these days. A community nurse helped our family a lot, when my son was diagnosed. That was 10 years ago. I thought my son was just healthy and lively, but he was running round and round all the time, because he was obsessed with wheels. He used to stare at wheels on cars, and run round and round. Some people think that is funny, but its not. I hate beind called a nutter all the time and wish people could be more kind. My son is in a special school, he was getting into trouble all the time in mainstream, he loves his school where he is now though and is doing really well. They are all disabled in some way, so theres less bullying, and the kids seem really happy. Its a shame you have to send them to special school, but its terrible to get bullied.

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The lady who cried a lot said on 21 December 2011

Its a relief when you do get it diagnosed. I had a bad time as a child. I felt like an alien. My son has been diagnosed with it, and other members of our family. I didnt think there was anything wrong with him, because of other people in the family with it, to me its normal but other people called us "nutters", which is very unpleasant and unkind. I cant see anything wrong with me but apparently according to other people I am weird. You can get tricked by people with bad intent if you have Aspergers Syndrome. I used to be obsessed with ballet, and people got sick of it, of me talking about it all the time. I didn't realise how boring I was to other people, and was very upset when I realised what other people thought about me. I know one man with it who used to hoard things, and you could hardly get in his house, but he knew where everything was. I had to help him tidy up his house, which was very hard work.

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phayes said on 03 May 2011

One of your external links is to Autism Independent UK. Recently I had cause to have a look at that organisation's website and found among its pages some very worrying features. For example, I found links to a website associated with the notorious DAN! quackery (broken as it happens) and to the anti-vaccine JABS organisation's website. The link on AI UK's front page, “Vacines [sic] Fact Sheet”, leads not to a vaccine fact sheet at all, but to a page advertising the services of a law firm specialising in accident and injury cases!

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suewell said on 04 September 2010

Unfortunately life is not always as simple as a straight forward diagnosis that most of you have had good fortune to recieve. My son is now 9 years old, at 5 after 2years of seeing professionals he was given the NAD-DOS diagnosis which means he has some sort of disorder but they cant put him into any bracket because somethings like motor skills are ok and other things like learning skill, emotionally void, verbal skills and memory retention are not. He never used to make eye contact but years of holding his chin softly up when he responds to me has taught him to raise his eyes and eyebrows and look at people from a head down possition. He can walk backwords, play catch allbeit clumsily and ride a bike with some ease all through myself and my husbands perserverance. A far cry from the little three year old that could not talk, screamed all the time and would wonder up the street with a nappy on if the door was left unlocked, we suffered fires in the house at 4yrs through his facination with fire ( plugged in a toaster behind the sette and filled it with lego and paper, popped a car in the microwave and pressed the buttons) years later he still rocks himself to sleep and sings loudly every night. His learning difficulties have become more apparent and he is 5.5years average at school. Our problem is we tried to get him reasessed at the age of 7years feeling that he had settled into himself we might get a propper diagnosis, the doctor/ specialist who saw him at our doctor surgery declared he was not NAD-DOS and just had learning difficulties. My worry is that he is slipping through the net, that he has an entitlement to have support that he cannot access without a proper diagnosis and that later on as he becomes an adult how will he cope with life as a parent I would like to think he will be able to function indepedently in society, But with no support I cant see him deveolping past what we as parents can offer him.

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caz11 said on 30 June 2010

I have spent 9 years looking for a diagnosis for my son. He was diagnosed as having emotional behavioral problems for years but we knew there was more to it. Eventually a school psychologist tested him and told us that she was 99%sure that he had aspergers. It took another year for the so called professionals to admit that there was more to his condition than emotional problems. However, although I was given a diagnosis of asd, it was stressed that this diagnosis was only given to me to keep me happy and I was sent on my merry way!!! I have received no support at all and I feel that my son has been denied treatment just because they were too slow to pick up on the clues. I would like to know if cutting out sugar and other dietary products may help my son as his behavior can be off the wall at times and he flies into rages. Frustrated in Ireland

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sega111 said on 12 May 2010

i have Highfunctioning autism (asperger syndrome) and my life has been stressful and little horror but at the same time enjoyable. ive been diagonsed with Autism at the age of 10 along with ADHD (ATTENTION DEFLICT HYPERACTIVE DISORDER). ever since secondary school i found it hard to cope for a while but i hav a lot of support from my autistic centre the st werburgh centre and now im more indipence and more sociabal than i used to be. i hardly have much struggle wth it now but still struggle with some parts such as routine a little but i learn to get on with it.
not bad for someone at 15 years old

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Pat101 said on 23 April 2010

I have a son on the Autistic spectrum, Aspergers / high functioning end, yes he likes order and structure, and we try to make everything just so for him but he also needs to understand that life is not structured and ordered, things have to be changed at short notice, we try to introduce changes at short notice, so that he can cope with lifes changes when he is an adult. I wish we could have been given more information after he was diagnosed, rather than he has ASD; then nothing we were left in a void not knowing how to help him. we found supportive parents very good and the local NAS branch a great help. These services need to be sign posted, as a way of getting much needed support after diagnosis, not just left in limbo.

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KLExx3 said on 27 February 2010

No Dansma your not deluding yourself love, his behaviour can improve with the correct support, the extent of which will depend on what type of ASD he has, the level to which he is affected and the way in which he is supported. I've seen first hand that often parents aren't always fantastic at dealing with their children's ASD's however well meaning they are. It is important to not always put behaviour's down to their condition, in the case of children with Asperger Syndrome for example, who in most cases are perfectly capable of following instructions, once they have grasped the meaning of them. Don't make excuses for your child's behaviour, a child with autism must still be told what they are doing is wrong, if in fact it is so, otherwise they will never be able to understand that their behaviour is unacceptable.
A great way to help achieve more desireable behaviour is through token economy. Reward your child with small tokens when they have done well at something. i.e. a gold star on a chart with a prize/ activity when they have reached a certain goal. This visual aid tends to work very well, and helps the child to understand more clearly as he can recognise that things have a structure (children with ASD's tend to love order, structure and routine). Constant praise when the child has done something correct is another way of focusing on desirable behaviour, and encouraging this. Routine can also be another way to help your child, create a visual chart with pictures of his day, i.e. meal times, school, bed time, etc. This will help your child recognise the order and what is going to happen during the day, so he will be less confused and afraid when moving from one situation to another.

I hope this has helped somewhat, feel free to ask anything else you need to know =) I'll try my best to help.

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JayWalker said on 04 February 2010

Why do reference sites always assume autism only affects children? Just once, I'd love to see something about the impact it has on adults. Just because our generation were written off as "idiot savants" doesn't mean the issue can't be addressed now.

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dansma said on 03 February 2010

my son has just recently been diagnosed with ASD in the weeks before his diagnosis his behaviour (just like the flip of a switch) changed. he understands a lot more of what i tell and ask him. he doesnt cry as much and is much easier to calm down when upset. he will be 4 in april.i know he is diff from other kids his age but i have great confidence with the proper tutouring he will improve tremendously. am i deluding myself?

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