Where an opt-out doesn't apply

There are some circumstances where opt-outs do not apply. In these circumstances, your confidential patient information will still be used.

Opting out will not apply:

  • where the information is used for purposes relating to your individual care
  • where the confidential patient information does not contain your NHS number if obtaining the number would involve disproportionate effort
  • if you have given consent for your data to be used for a specific reason, like a medical research study
  • where data is anonymised which means you cannot be identified from the information
  • where there is a legal requirement to provide information, such as an order of court
  • where there is an overriding public interest in the disclosure of your data
  • where information is used to support the management of communicable diseases and other risks to public health, like meningitis
  • to information given to the Office for National Statistics for official statistics, like the Population Census
  • to national patient experience surveys sent out before April 2019
  • to data shared with Public Health England for the National Cancer Registration Service and National Congenital Anomalies and Rare Diseases Registration Service

More information on the cancer and rare disease registries - Page opens in new window .