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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Macintyre
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Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
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We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
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Children, young people and adults with learning disabilities and/or autism
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PSPA
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Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
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PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
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Carers, Professionals, Family of PSP/CBD patients.
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The MedicAlert Foundation
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Tel: 01908 951045
Suite 1
Liscombe South
Liscombe Park
Soulbury
Buckinghamshire
LU7 0JL
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We are a registered charity providing a life-saving identification system for individuals with hidden medical conditions and allergies. This takes the form of body-worn bracelets or necklets (known as MedicAlert Emblems) bearing the MedicAlert symbol on the disc and supported by a 24 hour emergen...
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Individuals with hidden medical conditions and allergies, their carers, general public, and health care professionals
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Me Association
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Tel: 0344 5765326
7 Apollo Office Court
Radclive Road
Gawcott
Buckinghamshire
MK18 4DF
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The ME Association wants the UK to be a better place for people with ME/CFS – somewhere where the physical nature of the illness is taken seriously and sufferers get the respect they deserve. We bring campaigning, information and support to the mix to make this happen and run ME Connect, the UK's...
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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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Insulin Dependent Diabetes Trust
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Tel: 01604 622837
210 Abington Avenue
Northampton
Northamptonshire
NN1 4PR
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The Insulin Dependent Diabetes Trust (IDDT) offers FREE support and information to people with diabetes, their families and health professionals on the issues that are important to them. Our Helpline offers a friendly understanding ear when the going gets tough.
Diabetes can cause serious long-...
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People with diabetes, parents, carers, teachers, health professionals and the general public
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Dyspraxia Foundation
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Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
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The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
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Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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