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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Heart Uk
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Tel: 0345 450 5988
7 North Road
Maidenhead
Berkshire
SL6 1PE
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At HEART UK we're passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support, a telephone helpline, website and membership scheme.
We're also committed to raising awareness about the risks of high cholesterol, l...
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Colostomy UK
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Tel: 0800 328 4257
100 Berkshire Place
Winnersh
Wokingham
Berkshire
RG41 5RD
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The primary role of the Colostomy UK is to represent the interests of people with a colostomy. We are experts in living with a colostomy and that experience is available to all colostomates, via personal contact with our volunteers.
We are here to provide support, reassurance and practical infor...
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People with a colostomy, their families and carers
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Coeliac Uk
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Tel: 0333 332 2033
3rd Floor
Apollo Centre
Desborough Road
High Wycombe
Buckinghamshire
HP11 2QW
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For over 50 years Coeliac UK been helping people with coeliac disease and other gluten related conditions live happier, healthier lives. They do this by striving for better gluten free food in more places, providing independent, trustworthy advice and support to their community, and funding cruci...
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Those diagnosed with coeliac disease, seeking a diagnosis, supporting a friend or relative or those trying to find out more about the gluten free diet, coeliac disease or dermatitis herpetiformis.
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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The High Wycombe And District Disabled Friendship Club
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Tel: 01494 814885
10 Hillcroft Road
Tylers Green
High Wycombe
Buckinghamshire
HP10 8EA
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The friendship club provides opportunity for disabled people to socialise. Entertainment and refreshments are also arranged. They meet at the Green Street Centre Desborough Road High Wycombe. The organisers may be able to provide transport for people not able to get to the venue. Meet second Sat...
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Hearing Dogs For Deaf People
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Tel: 01844 348100
The Grange (Head Office)
Wycombe Road
Saunderton
Princes Risborough
Buckinghamshire
HP27 9NS
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Nearly nine million of the UK population experience some degree of hearing loss. That's one person in every seven. Over 650,000 of these people could benefit from a hearing dog.
We train dogs to respond to specific sounds which hearing people often take for granted, such as the alarm clock, door...
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Severely and profoundly deaf people; their families; carers; health specialists, etc
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Ostomy Lifestyle
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Tel: 0800 731 4264
RG12 2XB
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Ostomy Lifestyle is the UK charity that provides support, advice and information for anyone affected by stoma surgery on their bowel or bladder.
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Anyone affected by stoma surgery (patients, carers, partners, friends, family, health care professionals)
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