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Colostomy UK
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Tel: 0800 328 4257
100 Berkshire Place
Winnersh
Wokingham
Berkshire
RG41 5RD
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The primary role of the Colostomy UK is to represent the interests of people with a colostomy. We are experts in living with a colostomy and that experience is available to all colostomates, via personal contact with our volunteers.
We are here to provide support, reassurance and practical infor...
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People with a colostomy, their families and carers
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Heart Uk
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Tel: 0345 450 5988
7 North Road
Maidenhead
Berkshire
SL6 1PE
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At HEART UK we're passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support, a telephone helpline, website and membership scheme.
We're also committed to raising awareness about the risks of high cholesterol, l...
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Ostomy Lifestyle
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Tel: 0800 731 4264
RG12 2XB
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Ostomy Lifestyle is the UK charity that provides support, advice and information for anyone affected by stoma surgery on their bowel or bladder.
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Anyone affected by stoma surgery (patients, carers, partners, friends, family, health care professionals)
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Coeliac Uk
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Tel: 0333 332 2033
3rd Floor
Apollo Centre
Desborough Road
High Wycombe
Buckinghamshire
HP11 2QW
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For over 50 years Coeliac UK been helping people with coeliac disease and other gluten related conditions live happier, healthier lives. They do this by striving for better gluten free food in more places, providing independent, trustworthy advice and support to their community, and funding cruci...
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Those diagnosed with coeliac disease, seeking a diagnosis, supporting a friend or relative or those trying to find out more about the gluten free diet, coeliac disease or dermatitis herpetiformis.
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The Makaton Charity
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Tel: 01276 606760
Manor House
46 London Road
Blackwater
Camberley
Surrey
GU17 0AA
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Makaton is a language programme which uses signs, symbols and speech to enable people with learning and communication difficulties to communicate.
The Makaton Charity:
- provides training to parents, carers, and professionals
- develops and produces printed and electronic resources
- works with...
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Parents, carers, professionals and users
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Tourettes Action
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Tel: 0300 777 8427
Kings Court
91-93 HIgh Street
Camberley
Surrey
GU15 3RN
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Tourettes Action is the leading support and research charity for people with Tourette Syndrome and their families. We want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full.
• A helpdesk is open Monday to Friday 9am - 5pm
•...
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People with Tourette Syndrome and their families.
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