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Cardiomyopathy Association
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Tel: 01494 791224
Unit 10, Chiltern Court
Asheridge Road
Chesham
Buckinghamshire
HP5 2PX
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The charity provides information and support to families affected by the heart muscle disease. It holds information days around the country, has a network of people affected by the disease who provide one-to-one telephone support, has support groups around the UK and a website packed with inform...
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n/a
Data not available
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Macintyre
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Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
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We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
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Children, young people and adults with learning disabilities and/or autism
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PSPA
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Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
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PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
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Carers, Professionals, Family of PSP/CBD patients.
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Atrial Fibrillation Association (Afa)
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Tel: 01789 867 502
OX7 5SR
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Atrial Fibrillation Association (AFA) is an international charity which provides information, support and access to established, new or innovative treatments for Atrial Fibrillation (AF).
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Patients, carers, patient information groups, members of the public, medical professionals, organisations etc
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Arrhythmia Alliance
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Tel: 01789 867501
Unit 6B
Essex House
Cromwell Business Park
Chipping Norton
Warwickshire
OX7 5SR
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Arrhythmia Alliance (A-A) is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. These groups remain independent, however, work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.
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Patients, carers, patient information groups, members of the public, medical professionals, organisations etc
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Society For Mucopolysaccharide Diseases (Mps Society)
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Tel: 0345 389 9901
MPS House
Repton Place
White Lion Road
Amersham
Buckinghamshire
HP7 9LP
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The Society for Mucopolysaccharide Diseases (MPS Society) is the only UK charity supporting individuals and families affected by MPS and related diseases.
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Anyone affected by MPS and related diseases.
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Heart Uk
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Tel: 0345 450 5988
7 North Road
Maidenhead
Berkshire
SL6 1PE
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At HEART UK we're passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support, a telephone helpline, website and membership scheme.
We're also committed to raising awareness about the risks of high cholesterol, l...
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