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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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Coeliac Uk
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Tel: 0333 332 2033
3rd Floor
Apollo Centre
Desborough Road
High Wycombe
Buckinghamshire
HP11 2QW
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For over 50 years Coeliac UK been helping people with coeliac disease and other gluten related conditions live happier, healthier lives. They do this by striving for better gluten free food in more places, providing independent, trustworthy advice and support to their community, and funding cruci...
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Those diagnosed with coeliac disease, seeking a diagnosis, supporting a friend or relative or those trying to find out more about the gluten free diet, coeliac disease or dermatitis herpetiformis.
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Cardiomyopathy Association
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Tel: 01494 791224
Unit 10, Chiltern Court
Asheridge Road
Chesham
Buckinghamshire
HP5 2PX
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The charity provides information and support to families affected by the heart muscle disease. It holds information days around the country, has a network of people affected by the disease who provide one-to-one telephone support, has support groups around the UK and a website packed with inform...
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The High Wycombe And District Disabled Friendship Club
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Tel: 01494 814885
10 Hillcroft Road
Tylers Green
High Wycombe
Buckinghamshire
HP10 8EA
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The friendship club provides opportunity for disabled people to socialise. Entertainment and refreshments are also arranged. They meet at the Green Street Centre Desborough Road High Wycombe. The organisers may be able to provide transport for people not able to get to the venue. Meet second Sat...
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Insulin Dependent Diabetes Trust
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Tel: 01604 622837
210 Abington Avenue
Northampton
Northamptonshire
NN1 4PR
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The Insulin Dependent Diabetes Trust (IDDT) offers FREE support and information to people with diabetes, their families and health professionals on the issues that are important to them. Our Helpline offers a friendly understanding ear when the going gets tough.
Diabetes can cause serious long-...
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People with diabetes, parents, carers, teachers, health professionals and the general public
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Society For Mucopolysaccharide Diseases (Mps Society)
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Tel: 0345 389 9901
MPS House
Repton Place
White Lion Road
Amersham
Buckinghamshire
HP7 9LP
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The Society for Mucopolysaccharide Diseases (MPS Society) is the only UK charity supporting individuals and families affected by MPS and related diseases.
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Anyone affected by MPS and related diseases.
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