Chronic fatigue syndrome - Treatment 

Treating chronic fatigue syndrome 

CBT expert

Professor David Clark explains how cognitive behavioural therapy (CBT) works and who could benefit from it.

Media last reviewed: 24/04/2013

Next review due: 24/04/2015

Complementary therapies and supplements

Although some people with CFS have reported improvements from complementary therapies, there is little evidence to suggest they are effective for the condition. Therefore, their use is not usually recommended for CFS.

There is also insufficient evidence to recommend taking dietary supplements, such as vitamin B12 and vitamin C for CFS. 

There is no cure for chronic fatigue syndrome (CFS), but treatments can help relieve the symptoms.

The treatments used will depend on how CFS affects you. Early diagnosis, medication to control certain symptoms and lifestyle measures can all help (see below).

CFS may last a long time, but treatment often helps improve the symptoms.

Treatment programme

The National Institute for Health and Care Excellence (NICE) advises that an individual programme of treatment should be offered to you with the aims of:

  • maintaining and, if possible, extending your emotional and physical abilities
  • managing the physical and emotional effects of your symptoms 

You may be offered the treatments explained below, but remember: what works for one person may not work for you.

The benefits and risks of each treatment should be explained to you, as some treatments could make your symptoms worse. Both you and the healthcare professional treating you will decide on your treatment programme. You have the right to refuse or withdraw from any treatment recommended for you.

If your symptoms continue to get worse for several days after trying a certain treatment, or if your symptoms are particularly severe, contact the healthcare professional who is treating you. It may be necessary to amend your treatment programme.

Cognitive behavioural therapy

Cognitive behavioural therapy (CBT) is a type of therapy that can help you manage CFS by changing the way you think and behave. It's often used as a treatment for a range of health conditions.

CBT aims to help reduce the severity of your symptoms and the distress associated with CFS. It works by breaking down overwhelming problems into smaller parts and by breaking the negative cycle of interconnected thoughts, feelings, physical sensations and actions.

Ideally, your CBT therapist will have experience in dealing with CFS and treatment will be offered on a one-to-one basis. The treatment will be tailored to your needs and may include some of the following:

  • helping you to accept your diagnosis
  • challenging thoughts that could prevent your symptoms improving
  • trying to increase your sense of control over your symptoms

The use of CBT does not mean CFS is considered to be a psychological condition. It is often used as a treatment for a variety of long-term conditions, such as cancer and rheumatoid arthritis.

Graded exercise therapy

Graded exercise therapy (GET) is a structured exercise programme that aims to gradually increase how long you can carry out a physical activity. This will usually involve aerobic exercise (exercise that raises your heart rate) such as swimming or walking. You will have your own exercise programme adapted to your own physical capabilities.

GET should only be carried out by a trained specialist with experience in CFS and, if possible, should be offered on a one-to-one basis. After finding your 'baseline (what you can comfortably do already) in the exercise, you will gradually increase:

  • the length of time that you do the exercise
  • the exercise intensity

As part of your exercise programme, you and your therapist will set goals, such as being able to walk to the shops or carry out some gardening. It may take weeks, months or even years for you to achieve these goals, but it is very important that you do not exceed the exercise duration and intensity set for you.

Activity management

Activity management is another aspect of your treatment programme that involves setting individual goals and gradually increasing your activity levels. You may be asked to keep a diary of your current activity and rest periods to establish your baseline. Activities can then be gradually increased in a way that you find manageable.

Medication

There is no medication available that can treat CFS specifically, but different medicines may be used to relieve some of the symptoms of the condition.

Over-the-counter painkillers can help ease any muscle pain, joint pain and headaches you may have. Stronger painkillers can also be prescribed by your GP, although they should only be used on a short-term basis.

If you have chronic (long-term) pain, you may be referred to a pain management clinic. There are about 300 of these across the UK, mostly located in hospitals.

Antidepressants can be useful for people with CFS who are in pain or having trouble sleeping. Amitriptyline is a low-dose tricyclic antidepressant that may be prescribed. Amitriptyline is not suitable for everyone  for example, it may not be suitable if you have a history of heart problems. It can also cause side effects such as a dry mouth, blurred vision, dizziness and drowsiness.

If you experience severe nausea due to CFS, you may benefit from a type of medication called an anti-emetic.

Lifestyle advice

As well as these treatments, you may find the lifestyle advice below helpful.

Pacing

Pacing may be a useful way of controlling CFS symptoms. It involves balancing periods of activity with periods of rest.

Pacing means not overdoing it or pushing yourself beyond your limits. If you do, it could slow down your progress in the long term. Over time, you can gradually increase your periods of activity, while making sure they are balanced with periods of rest.

Learning how to make the most of your energy helps increase the amount that you can do. However, you may need to arrange your daily and weekly activities around when you can be active and when you need to rest.

If you pace your activities at a level that is right for you – rather than rushing to do as much as possible in a short space of time – you may be able to make steady progress.

However, it is important to note that there are some uncertainties about pacing. There is insufficient evidence on the benefits or harm of this treatment, although it is often recommended for CFS.

Other self-help techniques

The following recommendations may also help:

  • avoid stressful situations
  • avoid alcohol, caffeine, sugar and sweeteners
  • avoid any food and drink that you are sensitive to
  • eat small, regular meals to help reduce any nausea
  • spend time relaxing
  • try not to sleep or nap excessively, as this does not help and may make any sleeping problems worse

Relapses

A relapse is when your symptoms get worse for some time, leaving you unable to function at the level you previously managed.

Relapses are a common part of CFS and can be caused by a number of factors, such as an infection or an unplanned activity. Sometimes there is no clear cause.

The healthcare professionals treating you can help you manage your relapse, by:

  • including more breaks with your current levels of activities
  • teaching you relaxation and breathing techniques
  • encouraging you to be optimistic about your recovery

Over time and with treatment, many people with CFS begin to show improvement.

Page last reviewed: 20/03/2013

Next review due: 20/03/2015

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Comments

The 27 comments posted are personal views. Any information they give has not been checked and may not be accurate.

anon1961 said on 26 September 2014

I was finally diagnosed in 2013. I contacted GF when I was a teenager and took ages to recover, after that a cold would last much longer than other people's. Then I noticed how tired I would get after going to the gym, just kept saying no pain no gain and pushed harder. Then I had a child and found it exhusted looking after them glad to go back to work I was always tired. That continued so nights I thought I hadn't slept at all although I had. In 1994 I was diagnosed with RSI and in mid ninetes, meneriers disease. Then in 2002 I was diagnosed with IBS and then in 2013 diagnosed with CFS.

I believe they are all some how connected and that research needs to be looked at bloods and cortisol levels in the body. My own cortisol levels are all wrong. My levels taken at 11 am are what they would normally be in a healthy person at night time.They are incredibly low. I also think they need to research oxygen levels in the blood.

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anon oxon said on 20 May 2014

The same happened to me. I also had to fill out lots of activity charts. Did it do me any good? No. Personally I wouldn't bother. Pacing can help some people. And having a spread of different things during the week. But a person with bad ME/CFS can do very little. That is the nature of the illness. Have you thought of raising this issue as a complaint as it doesn't sound as though the person you saw was very sympathetic to your situation.

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ewc1991 said on 24 February 2014

I was diagnosed wit M.E or as they say CFS, 7 years ago after a long 5 year battle to find out what was wrong with me. I was sent for CBT therapy. I spent 12 month of my life, clock watching and filling in an daily sheet of my activities for every hour of the day. Only to be "told off" like a small child if I had filled it in incorrectly, or didn't do something quite right. Sadly, life doesn't go from hour to hour, things crop up. After 12 moths I was discharged. Did it help? No.
I've had no help since I've had to look after my two elderly parents which I lost within 1 year of each other, one to stroke one to cancer. No help from anyone 24/7 solo care from myself. Now that it has taken its toll on me and I feel as if I need help myself to try and feel a little better, everytime I go to my G,P (and not the same one all the time) I pour out how I feel only to be told "well your looking well, just have a few earlier nights". I have no help health or money wise, I feel too ill to work I need time to rest. But sadly as my GP's say I look and think I'm well what can do. Muddle on until I die myself so it seems.

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Ebb100 said on 04 December 2013

I believe what is missing most here is information relating to the varying degrees and duration of symptom presentation. For some, CFS produces long term, disabling symptoms and I have the upmost empathy for those whose symptoms have been ongoing for a number of years. However, this isn't always the case. In the interest of providing a baIance I would like to add that I was diagnosed with CFS 18 months ago and following NHS and private treatment I am now back to working full time and I'm doing everything I was before. I feel better now than I ever have. I have made adjustments in my life but they are not in the form of enforcing limitations on myself. Using CBT and NLP techniques I have learnt to manage everyday stress and anxieties and see them for what they are - minor irritations. I spend a short amount of time each day practicing simple relaxation exercises, which in my opinion 'presses my re-set button', but otherwise I simply get on with life. If you have recently been given a CFS diagnosis, don't despair. The info here makes it sound like a life sentence...it doesn't have to be and isn't for everyone. Stay positve!

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tootired said on 17 September 2013

All irrelevant to me as I have Myalgic Encephalomyelitis not CFS!!!

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User799353 said on 29 August 2013

What the hell does extending your emotional abilities mean?? This CFS description is inaccurate and on completely the wrong track for many of us. The idea of increasing exercise gradually is in my view and experience complete and utter rubbish. when is the up to date science about mitochondria/adrenal fatigue and solutions based around this going to be properly investigated and then a relevant treatment plan be offered with modifications for individual types of cfs???

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joshy1105 said on 14 June 2013

Hilarious!! Ive had M.E for yrs almost died with liver failure severe vomiting and diarhea chronic pain went to hospital with what i thought was a chest infection couldnt breathe couldnt lay down exhausted excrutiating pain. I was xrayed had blood done no infection but deep tissue damage though no explanation why other than M.E. Im not depressed ive come to terms with the fact im stuck in a prison for want of better word. Pace..get..LOL what do u people think ive been doing???? I do this everyday for yrs still aint better severe cognitive function constant ana positive but lol low blood pressure below 90. Thankfully most of the leeds drs i have worked with recently have been amazing. My gp asked if i wanted to be refered to psychiatric help. God no i aint depressed i suffer cognitive function probs but i cannot be bothered with people who think its all in the mind. Its downright offensive and disgusting. As for it treats cancer patients the same no it doesnt cancer treatment is not just cbt otherwise u wud be killing people enmass u treat the psychological effects of diagnosis...u dont treat cancer with cbt. Luckily i rarely meet a dr nowadays who believes this stuff just had a major op and they discussed muscle trauma due to op and my anesthetic was adjusted and pain relief increased as was the possibility of me staying in longer to recover. When i told surgeon i had cfs she snapped and said u have M.E and will be treated accordingly. THANK YOU she was great. I find more and more people see this illness and treat is as a real illness and try to offer real treatments. we all do get and pace to a certain degree at home evryone does. I dont suffer from depression. I did go to see a psychologist once for a diagnosis she was supposed to specialize in cfs she told my dr i was fine told me i was suffering from stress i laughed said i wasnt she said its in ur subconcious lol told me i wasnt experiencing real pain within wks i was dying in septic shock liver shut down......

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blxsix said on 11 June 2013

Thirteen years ago I was told I had fibromylgia. Today I was told they were wrong, I have Chronis Fatigue Syndrome. I don't know what to believe. I have had chronic joint pain since age twelve - now thirty years. Medical tests discounted a lot of options until that diagnosis and now this one. Now I read about CBT helping me to deal with the pain. About how sufferers have periods of remission, when do I get one of those? About how painkillers don't help. I know the painkillers don't kill the pain, but they mute it a bit and make it possible to get through a day at work... even if I can't manage the housework when I get home. Will CBT help me? Sorry I know this is a bit of a rant, but the frustration I am feeling today pushed me to ask others who are reading these articles if they feel the same way. Thanks for listening.

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Bohemian88 said on 15 March 2013

I suffered from CFS for 7 years, as my condition worsened I would become completely paralysed unable to move or speak. I attended Leeds hospital on a monthly basis to treat my condition. I got to a point where I couldn't see a future and each day felt a never-ending marathon. I heard about The Lightning Process in a local newspaper, about how the illness could be cured in three days. I was very pessimistic and even on treatment day one; I didn't think it would work for one moment. I was so desperate; I would give anything a go. After the first day, I was a completely different person, the second and third days gave me the support to continue my success. I have been cured of my illness since 2008 and I have a life I never thought was possible. I hold down a full time job, maintenance of my horses, a Greek language course, Management diploma course and actively renovating a house. The illness may not start off in your head but is does cause an imbalance in your head. I was constantly challenging adrenaline, leaving me extremely fatigued. Through some simple mind re-programming tools, I could channel the endorphins, breaking the constant flow of adrenaline, this is the key. Whilst I was cured from the illness after the three days, It took me a further year to re-set my mind set, as It was ‘difficult’ being well. I had forgotten how to be well, this may sound ridiculous to some, however this is what happened to me.

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omewells said on 15 March 2013

I was diagnosed with CFS in 2010 after blood tests results confirmed I had Glandular fever. Overtime my symptoms have improved greatly I only need to take a day off to rest occasionally. One thing I believe that has really helped me is to take Vitamin B supplements daily.

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BeckyBlue said on 19 September 2012

I really do not wish to offend anyone. But this website has been drastically misunderstood. The website is poorly designed around informing others about the psychological interventions. The paragraph on CBT is not trying to say that CFS is a psychological condition at all. Unfortunately it is poorly written. The paragraph is trying to say that CBT can help with thoughts and behaviours that an individual is having that aren't helping their condition. By changing these these thoughts/behaviours CBT aims to help reduce symptoms. Again, this is not saying CFS is psychological based. For example, high levels of depression based on thoughts about the world around you might have a detrimental effect on symptoms and so might anxiety. Psychology and biology are deeply intertwined. Therefore, by changing areas of psychology symptoms of CFS may not be aggravated/so severe. This is what I think the paragraph means to say :)

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bnora said on 09 August 2012

I was diagnosed with ME/CFS in March of this year after suffering with it quite severely for almost three years. I had to give up work, socialising and even housework. On a bad day I was crawling up the stairs to use the toilet, other days I could not get out of bed. I was exasperated by the lack of relevant help from the NHS, feeling like I was being left to rot. The problem is no one knows what causes this illness but one thing I can assure you is it is not psychological. Since May of this year I have been in recovery. I kept doing my own research and had small amounts of success and then I would relapse, but for three months I have been well. How did I do this? I made changes to my diet. I cut out gluten, sugar, wheat, yeast and dairy all together and over night I recovered. I went from being bedbound to running around the park within two days. Now, the only time I get symptoms is when I fall off the wagon, and the only symptom I get is fatigue (all the other symptoms have disappeared completely), which shows up the following day and only lasts for 24 hours. If you are struggling with this illness then I urge you to overhaul your diet. I believe this is the main area the medics should be researching as so many people see results in this way. CBT and pacing and graded exercise may help you a little bit to manage your symptoms but its not going to cure you. Diet has fixed me when the doctors told me they couldnt help me so give it a go.

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g_gnome1 said on 08 August 2012

I fail to see why anybody should be offended at the suggestion that CFS could be linked to mental illness in some people. Depression and CFS are very similar in many ways and does it really matter whether it has a psychological connection or nor? If certain drugs or therapies provide relief for some sufferers, why should they not follow this treatment? It seems that we have a case of psychological input somehow degrading the illness in some people's eyes when they would think nothing of taking the same medication if were called 'miracle CFE cure' instead of anti-depressant or anti-psychotic.

Mental illness is every bit as crippling as any physical illness and people need to grow up and accept this as fact. This is 2012 and people need to update their thinking in this area.

And yes, I do have CFS, and if anti-depressants et al would make be better I would take them in a hear-beat.

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B Mchugh said on 07 August 2012

I would be grateful if Ian Solley would provide the name and publisher of his book as I would be interested in reading it.

Also was the test for heavy metals different to the original test he first had on the NHS and what was the name of this second test that detected high levels of heavy metals.

Thanks

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loud2731 said on 19 July 2012

After years of being misdiagnosed with depression (I hated myself for being exhausted, ill, losing jobs etc) I was diagnosed with ME when I got really physically sick 2 years ago. The NHS promised me so much and I have received a few therapy sessions basically telling me to go to bed and get up at the same time, as if I have never thought of trying that before but I sleep through alarm clocks and constantly fall asleep anywhere and at any time. I am annoyed that the NHS wastes money on these therapists who fail to understand the illness. I would have joined BUPA, if they had not diagnosed me and gave false promises. The graded exercise noted in the NICE guidelines does not exist on the NHS.
On top of my problems, I have been vomiting everyday for over a year, I can rarely eat but have gained weight and a stomach and am just given anti sickness tablets. I do not believe this is down to ME and if I did not have ME a Gp would bother to seriously look at my stomach instead of lumping under ME, which it is not a symptom of. I feel that if I had a heart attack, they would ignore me because I have ME.
Has anyone got some serious suggestions to help me? I used to be a gym instructor but the gym will wipe me out for a week, I need to get fit and find a way for a Dr to look at my stomach and find out what is causing the sickness. I am very positive but no amount of positive thinking will stop me being sick. Yesterday, my Dr said I should read 'feel the fear and do it anyway' which is a joke when I had to visit him because the stomach cramps and vomiting have been worse during the last week. I have done lots of scary things in my life which I miss because I barely leave the house these days and my only fear is never getting well and poverty because I cannot work.

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Belvoir2 said on 28 June 2012

The NHS obviously has a lack of basic information regarding M.E.I was repeatedly asked if I had a problem with school,that seems to be the first assumption among a lot of doctors regarding children with M.E.I had been a good hard working student who enjoyed school ,but some still persisted in thinking it was phsycological.If a child is tired and is unable to speak directly ,and the problem is assumed to be themselves not their body ,then future damage can be done.We need more recognition and understanding ,especially for a younger person who may not be able to say what they want as clearly as an adult,and the help they need.

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Belvoir2 said on 28 June 2012

I have had M.E for three years now ,and have to agree with some of the above comments that the NHS is completelely lacking in knowledgew of what this illness is about.Because I am school age I was repeatedly asked,notably by people who should have been more concerned about my health,if I didn't like school.The doctors all seemed to assume it was myself not my body that was the problem.People,especially children who might not be able to explain themselves as well,need to be believed.

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tuesday1932 said on 11 June 2012

I find the information by the NHS regarding this is discusting. M.E is not a mental issue and not a matter of trying to will yourself to get better and change your way of thinking. my mother has had M.E for years now and still suffers severely, she is one of the most positive minded people you would ever meet and does not have mental issues! I also find it appaling that certain proffesionals simlpy think that M.E sufferers are exaggerating on the scale of the pain and do not seem to have any understanding of how difficult it is to live with this, I know (as much as you can) and I don't even have M.E but I have watched my mum in so much pain and frustration for so long now and find it unbearable that I can't do anything to help... just hope each day is a better one for her and wish every day that she will one day soon recover and be happy again. oh and it doesn't help that you get made to feel about as small as a raisin (e.g) by proffesional people who are supposed to be helping you and supporting you as well as being made to feel like a crook committing fraud by the social when you have lost your job after a year and a half of not being able to go to work 99% of the time and when you are so independant and have never had to sign on before.... especially when it is as little as £52 a week which is supposed to cover you to pay bills, to keep a roof over your head and to eat is ridiculous.
The NHS and the goverment both need to change and start listening to patients and helping them instead of ignoring everything and saying you have a make believe illness.

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Tall Bird said on 24 March 2012

Being an M.E. sufferer I am offended by some of the NHS content on these pages. The implication that Cognitive Behavioural Therapy (CBT) is a curative therapy for the majority of M.E. patients is not based on truly observable scientific evidence. It implies of course that there is an underlying observable psychological pathology. For most M.E. patients this is not the case and is nonsense. That is not to say of course that some patients with M.E. won't experience some benefit from CBT. For too long the M.E. agenda has been dictated to by a small group of psychiatrists who influence the policy and thinking on M.E. The NHS, Medical Research Council and government should collectively hang their heads in shame for continuing to abandon the welfare of M.E. patients. We have a right like all other patient groups to expect swift diagnosis and a range of objective, effective treatment options. For too long valid biomedical research has been ignored and funding has been siphoned in a psychiatric/psychological direction. Little wonder M.E. patients are forgotten and abandoned. Malcom Hooper's written complaint to The Lancet about the PACE trials makes illuminating reading and should be read by all newly diagnosed patients with "CFS" if you want a more balanced view about CFS treatment. The NHS NICE guidelines need to be re-written and they need to revert to the title M.E. (see Dr Byron Hyde's writings on CFS & M.E.). They also need to initiate the immediate use of the New M.E. International Consensus Criteria (2011) so that M.E. sufferers can get a swift diagnosis. We also need an effective suite of interventions & treatment. The psychiatric school has had its day. They have sold us, the NHS and MRC down the river and wasted valuable time.

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morphix said on 25 January 2012

I think I have CFS I have all the symptoms but have not been able to get a diagnosis as I also have social anxiety and speaking to a Dr is difficult. One thing which has helped me is Kratom, a natural plant product. It relieves many of the symptoms, boosts energy levels and acts like an anti-depressant on low mood.

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Rosiecat said on 04 December 2011

Hi, I was diagnosed with PVFS 11 years ago when I was 41 years old. Made some sort of recovery and have suffered two relapses in this condition, had to leave work 6 months ago, still very unwell, perhaps coupled with menopause and low body weight, very low blood pressure, the list is endless.
my main issue is the lack of recognition within my GP surgery, I am unable to consult any of my GP's due to the feeling that I am not being taken seriously. Spend many days at home, only able to go for shopping once every two weeks. I live alone with my cat and feel that, I have and can only expect now that I must help myself, I am taking mineral therapy and multivitamins at the moment.
Looking forward to getting my life back, I do understand this will take time, as I have been unwell for 11 years now.
I certainly do not feel depressed within myself, although my thoughts and feelings of sheer frustration with the lack of support from the NHS is what upsets me most..

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JeniL said on 24 November 2011

The reason Pacing and the Other self-help techniques you mentioned here are helpful with CFS is that they are treatment protocols for Adrenal Fatigue. CBT and GET do not really help CFF from my experience. Treatment protocol that helps the immune system, Adrenals and calming the Nervous System are best, these can include Nutrition, Lifestyle changes specific to enhancing immunity, Adrenal function and calming the Nervous System, EFT, NLP, TC Accupunture, gentle/sitting Smile Tai Chi and simple yoga stretches, Mindfulness Meditation.

Interestingly this section is the same advice for people with Adrenal Fatigue:

The following recommendations may also help:

Avoid stressful situations.
Avoid alcohol, caffeine, sugar and sweeteners.
Avoid other food and drink that you are sensitive to.
Eat small, regular meals.
Spend time relaxing.

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JeniL said on 24 November 2011

Came here to see if the NHS has caught up with the latest research & developing more effective treatments that work better, but I see not. The thinking & treatment protocol seems no different from 10 years ago, it's just more accessible.

"CBT helps you realise that your problems are often created by you." Really not a helpful attitude NHS, no wonder the treatments are not effective! If this is the case, why does CBT not help many people with CFS & why doesn't it cure CFS if CFS a mental problem? I'm sorry NHS, but CBT and GET do nothing to help a body overwhelmed with virus(s). Multiple Viruses caused my body to be in this state & go into a flight or fight response, affecting adrenals & causing 'CFS'. The only treatment protocols that have helped me have targeted the Immune System, Adrenals & calming the Nervous System (EFT based NLP helps calm Nervous System Response & helps the Adrenals as it targets physical mind-body response, rather than CBT 'Talking therapy' which does not seem to do much over placebo effect). Had Glandular fever when younger & believe as it stays in the body it has contributed to my immune system being overwhelmed by a later unknown virus or a combination of viruses/immunisations/chemical pollution/stress. Every standard blood test I've had consistently shown high White Blood Count, which shows my body is fighting a VIRUS. GPs seem to just ignore this & say everything is okay. Yes I don't have cancer or liver disease & I'm thankful for that, but a prolonged viral infection lasting 12 years is not fun or good for the body or mental health. I often hear people complain when they've had the flu and been off their feet for a couple of weeks - Imagine having permanent, fluctuating flu for 12 years and you are closer to understanding CFS. Immune & Adrenal Deficiency Syndrome, would be a more accurate name for this serious illness with Chronic Fatigue as a symptom alongside dizziness, etc.

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User336369 said on 28 September 2011

I have had ME/CFS for 5 years now and initially was housebound and very ill. My GP has been brilliant but the stigma, discrimination and blatantly abusive emphasis on 'psychiatric origin' of this illness is appalling. How dare the NHS abuse patients in this way? Especially when, like me, you have a clear aetiology and cause for the illness. The NICE guidelines need to be updated to the Canadian criteria and the illness taken seriously and given a proper name. ME/CFS is a bucket diagnosis with too much emphasis on fatigue - yes it is a significant factor (most days I feel like I have been hit by a bus) but it is NOT the only factor. To keep harping on about fatigue belittles the condition. You'd think the medical profession would have learned from the way it abused MS patients wouldn't you? It took the advent of the MRI to prove it as a valid illness and we could be decades away from a similar development for ME/CFS. Just because the test doesn't exist yet, doesn't mean the illness isn't real. The majority of chronic conditions can envoke depression etc but those patients are not just dismissed like we are. It is not 'all in our minds' or our age or anything else. Please stop insulting us and start approaching this illness properly - you could start by ditching the psychiatrists who have hijacked this condition.

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Seviyorumcok said on 24 September 2011

Thank you to jonajona34

This is what we need to do. So we can alert the public that what us cfs/me/fm sufferer's are going through on a daily bais is real! My life is just an existance and I hate people who are condescending to this condition!

They have never experienced chronic faigue or chronic pain so therefore some of the public don't seem to understand how devastating this condition is. It needs to be publicised more and the GP's need to be more understanding.

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Crazza said on 15 June 2011

Please see Dr Sarah Myhill's website for a very different view of CFS, and hope for sufferers.

drmyhill.co.uk


Best of luck to you all

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jonajona34 said on 29 May 2011

theres a petition above for all cfs/me sufferers in the uk,who feel that funds raised etc for this life wrecking illness can sign to, no more psychiatric research into me/cfs,and instead finding the real cause for this illness,and maybe one day a possible treatment or cure,instead of sufferers being binned into the psychiatric waste bin and left on our own to suffer in silence.you will have to copy the link and type into the web yourself,many thanks.

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