Endometriosis 

Introduction 

Endometriosis

Endometriosis is a common condition in which small pieces of the womb lining are found outside the womb. Find out what the symptoms and treatment options are, who is affected by it and how to cope with the pain.

Endometriosis is a common condition in which small pieces of the womb lining (the endometrium) are found outside the womb. This could be in the fallopian tubes, ovaries, bladder, bowel, vagina or rectum.

Endometriosis commonly causes pain in the lower abdomen (tummy), pelvis or lower back. It may also lead to fertility problems (see Symptoms of endometriosis for more information). However, some women have few or no symptoms.

The cause of endometriosis is uncertain, but there are several theories (see Causes of endometriosis for more information).

What happens?

The endometriosis cells behave in the same way as those that line the womb, so every month they grow during the menstrual cycle and are shed as a bleed.

Normally before a period, the endometrium thickens to receive a fertilised egg in response to a release of the hormone oestrogen. When pregnancy does not happen, the lining breaks down and leaves the body as menstrual blood (a period).

Endometriosis tissue anywhere in the body will go through the same process of thickening and shedding, but it has no way of leaving the body and is trapped. This leads to pain, swelling and sometimes damage to the fallopian tubes or ovaries, causing fertility problems.

Who is affected?

Endometriosis affects around 2 million women in the UK. Most of them are diagnosed between the ages of 25 and 40.

Outlook

There is no known cure for endometriosis. It is a chronic (long-term) condition that can cause pain, lack of energy, depression and fertility problems. However, symptoms can be managed and fertility improved with pain medication, hormone treatment or surgery, so that the condition does not interfere with your daily life.

Last reviewed: 19/01/2010

Next review due: 19/01/2012

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crispnm said on 08 September 2011

i had my laperoscopy done on the 18th of last month and am still stuffering major pain, they removed my endo but im really scared of what is still wrong with me i have been bleeding heavily and been back to the doctors 5 times since my operation. I am being refered to have an endoscopy done now aswel to discover what else is wrong!

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TMart20 said on 28 June 2011

I was diagnosed with endometriosis 6 years ago, at the age of twelve. Wasn't exactly the best news I've ever heard, especially as every time I have the patches lasered away the pain always comes back within a year. Unfortunately I don't think it will ever go away 100%, and the pain has had a severe impact on my education. The sooner a cure, or more permanent solution to getting rid of it is found, the better.

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mummyamy182 said on 24 April 2011

i have been suffering with severe pain and as of yet the hospital havent diagnosed anything. i ended up in hospital for 4 days last week and they still found nothing. i was doing research online and found endometriosis and i think this may be what i have but how do i go about getting this checked?

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freyamac said on 21 January 2011

I had my endometriosis treated at Stepping Hill Hospital with a Dr who was absolutely amazing, he made me feel reassured and really cares.
I had surgery to have it removed, and over a year later it still hasn't come back and my life is so much better now.
Mine started in my teens and got progressively worse. My symptoms were like a 'shock' feeling up my backside when I went to the toilet and after that could not sit down.
I cannot thank the staff on the womens unit enough, great people.

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TerriBerry said on 08 July 2010

hi i am only 16 i started my periods when i was 10 the pain was realy intense back then but as i have gotten older the pain has gotten alot worse 3 weeks ago i went to the Dr's to tell them what was wrong. 1 week later i was in the hospital having swabs taken, 8 days later i had my pre ops done, On Tuesday 6th July 2010 i had a laperoscopy as they where concerned as to what was happening inside, And what they found WAS GRADE 3 ENDROMETRIOSIS as i am only 16 me and my family being my mum dad gran exc are very scared and concerned i had been laserd that day aswell.

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kaucee said on 01 May 2010

they will try Hormone tablets or injections to see if this will help, if not they can remove it by burning them off this helps but can come back.
i know as i was under the best that specialises in endometriosis.
but you have to push for it at some doctors
my has returned but my doctor keeps fobbing me off despite i was promised if it comes back i will not have to spend another 10months proving this and will got straight back for my treatment not on the hospital waiting list either, as i would be a returning patient not a new patient.
so if your in load of pain seek to see the specialist
the pain and you can get back on with your life
don't leave it as 1 women actually had to have her left side of her womb totally removed.

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kaucee said on 01 May 2010

they will try Hormone tablets or injections to see if this will help, if not they can remove it by burning them off this helps but can come back.
i know as i was under the best that specialises in endometriosis.
but you have to push for it at some doctors
my has returned but my doctor keeps fobbing me off despite i was promised if it comes back i will not have to spend another 10months proving this and will got straight back for my treatment not on the hospital waiting list either, as i would be a returning patient not a new patient.
so if your in load of pain seek to see the specialist
the pain and you can get back on with your life
don't leave it as 1 women actually had to have her left side of her womb totally removed.

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