Coeliac disease 

Introduction 

Gluten is a protein found in wheat, barley and rye 

Coeliac UK

The UK's leading charity for people affected by coeliac disease is Coeliac UK.

Their website contains a range of useful resources, including information on gluten-free diets and specific products, as well as the details of local groups, volunteering and ongoing campaigns.

The charity also has a telephone helpline on 0845 305 2060, open Monday to Friday from 9am to 5pm.

Coeliac disease is a common digestive condition where a person has an adverse reaction to gluten.

Eating foods containing gluten can trigger a range of symptoms, such as:

  • diarrhoea, which may smell particularly unpleasant
  • bloating and flatulence (passing wind)
  • abdominal pain
  • weight loss
  • feeling tired all the time as a result of  malnutrition (not getting enough nutrients from food)
  • children not growing at the expected rate

Symptoms can range from mild to severe.

Read more about the symptoms of coeliac disease.

What causes coeliac disease?

Coeliac disease is an autoimmune condition. This is where the immune system – the body's defence against infection – mistakenly attacks healthy tissue.

Coeliac disease isn't an allergy or an intolerance to gluten.

In cases of coeliac disease, the immune system mistakes substances found inside gluten as a threat to the body and attacks them.

This damages the surface of the small bowel (intestines), disrupting the body's ability to absorb nutrients from food.

Exactly what causes the immune system to act in this way is still not entirely clear, although a combination of a person's genetic make-up and the environment appear to play a part.

Read more about the causes of coeliac disease.

Gluten

Gluten is a protein found in three types of cereal:

  • wheat
  • barley
  • rye

Gluten is found in any food that contains the above cereals, including:

  • pasta
  • cakes
  • breakfast cereals
  • most types of bread
  • certain types of sauces
  • some types of ready meals

In addition, most beers are made from barley.

Treating coeliac disease

There is no cure for coeliac disease, but switching to a gluten-free diet should help control symptoms and prevent the long-term consequences of the disease.

Even if symptoms are mild or non-existent, it is still recommended to change your diet, as continuing to eat gluten can lead to serious complications.

It is important to make sure your gluten-free diet is healthy and balanced. An increase in the range of available gluten-free foods in recent years has made it possible to eat both a healthy and varied gluten-free diet.

Read more about the treatment of coeliac disease.

Screening

Currently, screening for coeliac disease is not routinely carried out in England.

It is usually only recommended for people at an increased risk of developing the condition, such as those with a family history of the disease. 

It is recommended that first-degree relatives (parents, brothers, sisters and children) of people with coeliac disease are screened.

See diagnosing coeliac disease for more information about who should be screened for coeliac disease.

Complications

Complications of coeliac disease only tend to affect people who continue to eat gluten or who have yet to be diagnosed with the condition, which can be a common problem in milder cases.

Potential long-term complications include:

Less common and more serious complications include those affecting pregnancy, such as having a low-birth weight baby, and some types of cancers, such as bowel cancer.

Read more about the complications of coeliac disease.

Who is affected?

Coeliac disease is a common condition that affects approximately 1 in every 100 people in the UK.

However, some experts think this may be an underestimate because milder cases may go undiagnosed or be misdiagnosed as other digestive conditions, such as irritable bowel syndrome (IBS).

Reported cases of coeliac disease are two to three times higher in women than men and can develop at any age, although symptoms are most likely to develop:

  • during early childhood – at between 8 and 12 months old (though it may take several years before a correct diagnosis is made) 
  • in later adulthood – between the ages of 40 and 60 years

Page last reviewed: 31/07/2014

Next review due: 31/07/2016

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Comments

The 32 comments posted are personal views. Any information they give has not been checked and may not be accurate.

v4var said on 11 September 2014

What is the difference between Celiac and Coeliac

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Ksenia20 said on 29 July 2014

I am 22 years old and was diagnosed with Coeliacs Disease at around 18 months. I have lived my life ever since following a majority gluten-free diet. As a child eating something as small as a bite of a gingerbread man would leave me violently ill and even hospital bound on occasions.

However since becoming an "adult" and making my own diet choices I have come to find foods that I do not have a reaction to. For example the odd Yorkshire pudding, a piece of KFC chicken, a small slice of cake. I find I can eat these items and have no obvious reaction to the gluten.

As a diet rule I completely avoid non GF bread, pasta, pizza, most biscuits, batter, pastry etc. I tend to have a painful bloat that lasts for days, along with toilet issues and general uncomfort. However as I have never really eaten these products I couldn't say the full extent to my reaction to them.

I have always been curious as to why I can "get away" with eating some non GF products but not others. Could it be possible that due to my diagnosis being so early I have built up a tolerance to a small amount of gluten? If this is the case it could be that I could build this up to eventually introducing gluten totally back into my life. It makes me curious as generally the rule is that there is no cure to Coeliacs.

Has anyone else found their experience with Coeliacs to be similar to mine, or can anyone offer some advice?

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puggy_256 said on 16 July 2014

Lola - I would strongly advise you to continue eating wheat until your test - the reason is that avoiding wheat may lead to a negative test result despite you having coeliac. That's the mistake I made, and I'm having to repeat the whole process.

I know it's not an easy thing to do, but you really must continue eating wheat whilst you're being tested, otherwise it's impossible to ever find out if you have coeliac or not!

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Lola195 said on 14 June 2014

I am undiagnosed but suspecting of having celiac disease. I am in my 40's and on Omeprazole as I suffer constant pain and burning cutting sensation in the stomach regularly but when eating gluten or gluten free bread I get pains in all my body and my breath smells horrible. I am due to have gastroscopy next month but 2 weeks of diet without bread or pasta or any grain apart from rice & quinoa proved helpful and I had no symptoms so yesterday I was missing my bread and went to Tesco and bought Genious Gluten Free Bread, and I am in bad with cramps all over my body what a hell. This problem is since my childhood so I guess I will not be able to rely on GF products just to stick to meat, fish, fruit & vegs and a bit of rice. I have conducted a research and quite few doctors say that corn or cornflour contains gluten (55%) and it present in the ingredients list on Genious bread. :-((.

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gilliver17 said on 05 June 2014

I have all of the above symtoms of CD but have been diagnosed with IBS and prescribed Lansoprazole. These meds help with the constant nausea feeling i get and can eat anything i want with them. When i dont take my meds i i cant eat as the contact nausea feeling is too much to eat. Im always tired and can be very moody. Do you think i have CD rather than IBS?

Thanks

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kew67 said on 12 May 2014

I was diagnosed with this at a very young age around about two but after about 8or 9 years had blood test done and my parents were told i didn't have it any more now been told that it never goes away so for the last 20+ years been eating wheat still had the symptoms but cause had been told it had gone no one thought anything of them until my brother heard something on the radio about it. So now going back on a gluten free diet .

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Welshman_in_California said on 03 May 2014

I was diagnosed with CD (Coeliac Disease) here in California in about 2008. I probably had it 50 years ago in the UK, by the extent of my villous atrophy. I remember the only part of Hovis that I could tolerate then were the TV ads.

I am sharing experience and research here, because some comments reflect unnecessary worry (two year old son). Others are describing symptoms related to not caused by Coeliac Disease.
In the 1960s my only symptom was preferring white bread. By 2011 it included several syncope attacks daily, automatic fainting response to insufficient oxygen in the brain. Fainting makes it easier to get oxygen to the brain. But it doesn't make it easier to drive on California freeways. I am no longer allowed to drive.

1. Do not worry. I'm very allergic to cheese. When I tell the Americans here, they say "I would miss it too much"
I had cheese twice. In 1958. I can't miss it because I don't even remember it. Cheese never crosses my mind, and I am trying to think of Wheat only as often as that.

2. You're giving up something weighing nothing.
CD is only triggered by three proteins within the gliadin component of gluten, only found in Germ, the germinating part of wheat, rye and barley kernels. Forget about rye. It's only used as animal feed over in the States (a little for rye-bread). Forgoing barley might be harder if you drank beer. Sorry. Very few beers are OK. Perhaps CD is saving you from a demoralising and slow alcoholic death. Except that whisky is OK with CD. Distilling destroys proteins. That leaves wheat. However big a part of your diet it was before, think of wheat-germ as the really small thing it actually is.

3. When shopping, think of all the other food you can have. And buy them. Here's just four words to tell you everything will be fine: meat, fish, fruit, vegetables.

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jjmacclad said on 15 April 2014

I don't like the sound of the troubles people have had getting diagnosed - i've been struggling since the new year and if the Dr tells me one more time that it is just eczema i am going to scream - all the above symptoms tie in with what is going on and since I have been doing my best to avoid foods it gets better but the itching and the soreness when rash appears - from what i have read the rash part of it are dermatitis herpetiformis - i dont sleep coz of the itching - the rashes are horrible and along with everything this brings - it truly is driving me to distraction

The stomach issues i'd put down to spicy food and the headaches to drinking too much coffee, I used to go to the gym 5 days a week but struggled to want to go as well, its the not knowing that is hard - last time i went to the Dr having had 5 hours sleep in three days whe told me off for taking up an emergency appointment and asked me why I was back and not doing something to help myself - having spent £40 on the internet for various creams and potions - really not happy with the way the Doctors have dealt with it - they make you feel like you are a nuisance and then wonder why people dont like going

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User144395 said on 15 April 2014

Hello there, we are waiting for our sons test results for gluten intolerance and coeliac disease. I have read a lot online about both hoping to get a bit more understanding. But I'm really worried as my son is only two, and I haven't heard or seen much information for small children. Does anyone know of any where I can look please.

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Becky ceoliac for 4 year said on 05 April 2014

Hey all I'm coming up to the age of bein 21 and I'm. Ceoliac I hv bein for 4 years and for the past 1 or 2 years I have bein getting a lot more moody and my headaches and back aches ceim to be getting a lot worse than usual I'm always tired and feeling lazy and for the past though months gettin terrible stomachs pains what do u think I should do and we're do u all find ure food as I'm a picky eater and it's so exspensive to buy food I like and enjoy I think it's hard to be a ceoliac and the food in supermarkets are ridiculous prices and taste discussing it's got a lot worse for normal nice foods that young people like and I think there should be some type of claim we should receive to help us with the special food money prises x

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Jenz25 said on 14 March 2014

I am slightly concerned at the fact I have all of the symptoms of Coeliac disease and yet I have been told by my doctor that I have IBS and just to take laxatives! Most foods that I eat I will feel ill. Mostly wheat and dairy but apparently this is perfectly normal?

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glutenfreeself said on 11 February 2014

I was diagnosed in 2002 and my 7 year old daughter in 2010, when she was just 4. It is difficult at first, adapting, but, apart from the occasional error, we thrive on gluten free living - unlike before.

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caz1213 said on 29 October 2013

I'm 26 and have been struggling with stomach cramps and the symptoms of Coeliac disease since I was 4 or even younger! Within the past 6 years I have developed an intolerance to lactose as well. My symptoms vary at different times from severe abdominal pain, diarrhea and continually throwing up to stomach cramps, tiredness, headaches, back pain and bloating.

I have never actually been diagnosed with the condition as my mum didn't want me to have the biopsy when I was so young. I have been battling with doctors to give me an answer and to test me correctly. I have put off having a blood test because you have to go back to eating gluten before the result is valid. (I had blood tests when I was young but recently when I wanted a biopsy then said to take a blood test but that I was alright to stick to the gluten free diet. Obviously the results where negative and therefore I couldn’t go for the biopsy)

Recently I have had a life style change and end up eating out for dinner quite a lot. I have also moved to Australia where they don't seem to be so clued up about the condition. It is quite difficult to get chefs in restaurants to understand the condition and many haven't heard of 'gluten' before! (Sydney is so multicultural) I had a much easier time when living in the UK.

As I have been fairly used to irradiating gluten from my diet I have become accustom to selecting the food which are 'safe' for me to eat. However cutting out Lactose from my diet has been a huge challenge! It is very expensive to stick to such a strict diet as everything is priced through the roof! I believe there should be some kind of subsidy for people with dietary issues who have no choice but to pay extraordinary prices for basic food stuffs.

It has really helped to read the comments on this website and become more informed about the condition and how it can dramatically affect your overall health!

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mum of coaelics said on 13 August 2013

Both my daughter and son showed systems at the age of 20. It took my daughter 2 years of GP visits to get tested (3 years ago). She was feeling nausea, sickness and fatigue with no weight gain. Once she received the results to confirm she had coeliac and adjusted her diet with the help of the hospital dietician and consultant , the systems improved and within a couple of months she gained 2 stone and she felt much better( previously she didn't absorb anything including fat). She has yearly appointments at the hospital just to keep check that all is well. My son has just been diagnosed, within in 6 months of systems due to family history. Once they know its in the family testing gets done much more quickly. It does take time to adjust, when my daughter goes out for a meal she just checks first if they do a gluten free menu. Most places including macdonalds will help. Mac`s will do a big mac without the bun and serve it on a plate with cutlery. Don`t be afraid or embarrassed to ask. She now shops without any problems and can still eat the same meal has her partner, easy with home cooking. Downside is that gluten free is more expensive. It doesn`t need to control you, you control it and get on with life, the same as if you had diabetes which also runs in my family. Stay positive like my son who is looking forward to feeling better again and have more energy for football and work in a supermarket.





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cava said on 03 August 2013

HI, l'm new to all this, took my daughter to see consultant re her lack of growth and after blood tests have been told she has coeliac disease ! Me and hubby are still in shock and still don't really know what it entails, she will be 12 in August but is only measuring 124cm, she doesn't have any of the classic symptoms but have been told she will have to go to Alderhey for a biopsy under a general ! To make matters worse she is already a fussy eater and lives off pasta, cereals, crackers and other stuff, l'm dreading telling her and have decided not to say anything until we get the appointment for Alderhey ! Has anyone else experienced this ? Thanks in advance !

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Anaiya1986 said on 25 July 2013

I've been diagnosed with Coeliac Disease for almost 8 years now, and am completely fine with it. I enjoy food, I still go out to restaurants - its just using common sense more than anything.

My main issue was, at the time I was 19, extremley underweight (just over 6 stone) and passing out all the time. My experience of the NHS was terrible - my GP refused to refer me to a consultant, as he was convinced I had IBS and would not get my blood tested for anything else.

I then had to pay privately to visit a consultant, who's words to me were "You've probably got IBS, go home and eat a pizza to put some weight on". My Mum insisted I get tested for everything, and he reluctantly agreed.

Imagine his face when he had to tell me I had Coeliac Disease!

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sadjack said on 17 October 2012

I am a twice diagnosed coeliac with a 45 year gap between diagnosis, also a Professors endorsement ie HLA-DQ2positive.
There are elements of this condition that are being swept under the carpet so there is no justice or understanding for diagnosed coeliac's who cannot tolerate the reccommended treatment, the "gluten-free diet" for me I had continued symptoms. This then causes other overlooked symptoms and health conditions, other associated conditions being an increased risk of 'atrial fibrilation', to much histamine causing 'allergic reactions' or panic attacks, high blood pressure, urticaria. All overlooked.
I am personnally at risk of gluten content in foods/beverages and medications, my condition is considered 'rare' but not accepted that way.

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shannonrogan16 said on 03 October 2012

I have just been diagnosed with coeliac and im 16 years old i have no idea on what foods i can and cant eat or where to get help from, can anyone on here help me i feel so down at the moment because i am a person who really loved food and everything ive tried eating i dont like??

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Glutenfree Girl said on 22 August 2012

I've been diagnosed coeliac for 5 years and being someone who loved all food, it was horrible to have to become a 'fussy' eater. I'd advise anyone diagnosed to join Coeliac UK who help in all sorts of ways, not least where to start to enjoy food again, especially if your diet has been full of the things which are now off limits! You can still eat cakes and biscuits - sweet things are easy to find in the supermarket and cakes are the one thing which taste just as good made with gluten-free flour. And remember - there are more flours in the world which are gluten free than have gluten in them. But, like non-coeliacs, they won't help you lose weight!!! Fortunately for me, having never been a fussy eater, I love all fruit, vegetables, rice, fish, meat, cheese... etc and there are some manufacturers out there who are trying hard to find a good GF bread too and getting closer all the time... And my greatest loss? Real Ale... sob. So "richardo", posted on 1 August - join Coeliac UK and start discovering real gorgeous food. Good luck.

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ricnardo said on 01 August 2012

I need some help
being 22 stone very weak, tired, achy painful joints, from my toes to my nech shoulders etc, losing muscle and strength, diabetic type 2 and could nearly sleep all the time, and have sleep apnoe,
right i need to change my food, ..all of it,, also i dont like a variety of food

so leaving out cerals. english breakfast, cakes, biscuits, fried food, sandwiches, where the hell do i make a list of food that i can buy easily at a god price that wont go off quick that i can take with me when i work away,
I have nearly had enough, and to try and get fitter, just causes more pain and tiredness, i feel like 87 not 47
started putting on weight aged 16 or 17 afer school, and my latest doctor just said i need to lose weight, no really? think gastric band may be only option, and it doesnt help i am struggling not to eat since stopping smoking, anywya i need to be fitter, i want my sex life back, i want to be out of pain, and move better, its not good, i cant plan, prepare or even think about this stuff my mind is so dull foggy unclear, stressed

someone take me under their wing or guide me

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Uffington said on 18 July 2012

Also a great resource and support group is Gluten Free Guerrillas


http://glutenfreeguerrillas.healthunlocked.com/

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sunstorm said on 07 June 2012

At last, I have figured out what the problem has been been all this time, and am finally free of the pain and other symptoms that I had started to think was just part of being me.
Yes, at first I thought "what the hell am i going to eat?" I already live on a meat-free diet and have to avoid soya, so now with no gluten as well, I thought I might starve!
I was totally wrong though. I am now enjoying a delicious diet of free fish, fruit, veg, potatoes, rice etc. I tried the gluten free breads. Some of the ones made with soya flour are quite nice but as i can't eat soya, i was stuck with the other brands with do taste weird. I guess you could get used to them, but i prefer to do without. I've tried baking my own but without much success. However, Tescos have some good items on their gluten-free shelves. The pasta tastes almost as good as the real thing, and the apple pies and coconut macaroons are yummy! yes, i do miss pizza but then it wasn't doing me much good, so it's probably a good thing that i can't eat it anymore. I feel infinately more healthy and am no longer in pain so i would never consider going back to my old diet, i don't understand why anyone would want to go through pain and possible worse problems in the future just for a slice of pizza or a biscuit. it's just not worth it. there are still nice things to eat if you want snacks and puddings. ice cream for example. a gluten-free diet can be very enjoyable and you don't have to be a great cook. i'm certainly not. i eat a lot of fresh fish which takes just a couple of minutes in the microwave. have it with a jacket spud and salad. or you can make yourself a quick curry and rice. it just needs a bit of imagination, that's all.

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IdioSyncrasy said on 27 April 2012

Much as I sympathize with many of the sufferers on this site there isn't anything you can do about it, your born with it, I was diagnosed with it during the war & my parents had to bake my bread as there wasn't coeliac food available & I had a bad time growing up with it.
When i reached my teens I thought it's not going to go away so deal with it, I went onto a strict diet & have stayed on it all my life, when you get your head round the problem it's quite easy to deal with, it caused me to eat a healthy diet from then onwards, I'm now nearly 70 my cholesterol is 3.7 my BMI is 22.6 my BP is 118/76 & resting pulse rate is 55.
My best advise to all sufferers is get your head round it, it's not going to go away so there is no point in wasting your time winging, life's not fair so get over it & you can still lead a healthy & active life.
Hope this helps.
Mike

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wansanshoo said on 21 March 2012

Before I post, I will apologize in advance to any sensible ceoliacs. My brother was diagnosed when he was three, he is now thirty two, and has always lived a gluten free lifestyle. As I read these posts I get extremely frustrated, there is a vast array of gluten free products available out there certainly not as many as there should be, but more than enough to live a 'normal' healthy lifestyle, it is only laziness that prevents you eating properly, I do have sympathy for you, it can't be easy giving up food you have taken for granted, however as my brother says there is practically nothing you used to eat that you cannot find a gluten free version. The difference in the amount and quality of gluten free products now available compared to the 'sawdust' based products of the previous twenty years is vast, think yourself lucky you are only having to change your diet now. Once again I give my sympathy to you all, but it is not the end of the world. From a personal point of view paggy 304 you ain't missing much at pizza hut, and lilwead, my brother has worked in the building game for five years now, so you will get enough energy in your food once your body gets used to the diet, keep up with it the symptoms are much worse than the cure. Keep yer chin up all ceoliacs.

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ScottishBadger said on 16 February 2012

It has been 38 years now since I was diagnosed with coeliac diesease.I am 41 and it hasnt got the better of me yet!

I have never tasted "normal" bread or pastry and have always wondered what a chocolate eclair or doughnut would be like.

I know it must be difficult for people who have been use to eating freely rather than being told to suddenly eat "free-from"; but you will be amazed at how much you really can eat!

There are alot of companys looking for your money so shop around for what tastes good too you. If your like me and dont mind prescription bread *free prescriptions in Scotland then I can tell you I order hgh fibre sliced bread and have no shame in saying I also get digestive biscuits to "dunk " in my tea at work.

If your struggling...try not to be tempted to stray, especially when with friends (trying to fit in) as its not worth it and neither are they if thats what you have to do, when im cooking for friends or at a dinner party ... we all have wheat free! (one organic wheat free pasta comes close to the real deal according to non coeliac guests)

Remember its not the end of the world, once you get the hang of it you will not only feel better, but look better too.

High points: Spicy food and chocolate (not together!)
Low points: Wedding buffets (You just know your going to go hungry!)

Ive had Highs and Lows throughout my life with coeliac condition but im still loving life without the feel sorry factor, its all character building in the end ;)

Scottish Badger X

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ScottishBadger said on 15 February 2012

It has been 38 years now since I was diagnosed with coeliac diesease.I am 41 and it hasnt got the better of me yet!

I have never tasted "normal" bread or pastry and have always wondered what a chocolate eclair or doughnut would be like.

I know it must be difficult for people who have been use to eating freely rather than being told to suddenly eat "free-from" but you will be amazed at how much you really can eat!

There are alot of companys looking for your money so shop around for what tastes good too you. If your like me and dont mind prescription bread *free prescriptions in Scotland then I can tell you I order Juvela hgh fibre sliced bread and have no shame in saying I also get Juvela digestive biscuits to "dunk" in my tea at work.

If your struggling...try not to be tempted to stray, especially when with friends (trying to fit in) as its not worth it and neither are they if thats what you have to do, when im cooking for friends or at a dinner party ... we all have wheat free! (Dove Farm organic wheat free pasta comes close to the real deal according to non coeliac guests)

Remember its not the end of the world, once you get the hang of it you will not only feel better, but look better too.

High points: Spicy food and chocolate (not together!)
Low points: Wedding buffets (You just know your going to go hungry!)

Ive had Highs and Lows throughout my life with coeliac condition but im still loving life without the feel sorry factor, its all character building ;)

Scottish Badger X

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jmhzx said on 08 December 2011

i hate this condition. 6 months gluten free with only a few gluten accidents and still crippled by nausea, diarrhoea, skin itching and i've put on a stone because it's so hard to eat as I used to. My doctor is harsh, critical and thinks I should "just get on with it" and thinks I'm a complainer.

I'm desperate to see some change.

I've tried to get prescription foods but my GP's surgery couldn't get me what I wanted so they offered me 8 really basic items rather than the 18 items I've chosen.

.....and I really, really miss a pint of cold lager in the pub. Thankfully, cider is a decent alternative.

I was diagnosed 3 years ago but because of the lack of gluten free food and information I didn't do anything about it. in the 2 years since, there has been massive moves forward. so it's easier but by no means easy.

when will the symptoms go away?

John in Brighton


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rankini said on 26 August 2011

Best thing to do is join the Coeliac soceity, they produce a book each year helping with food choices. I also get bread, pizza bases, flour, biscuits and pasta through prescription. (Buy a yearly one).
It is easier if you can make your own food as then you can restrict the sugar etc content although I for one am unable to make pastry!
Do stick with the diet as you will feel so much better and you weight will adjust.

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CoeliacChic said on 03 July 2011

i have been diagnosed as a coeliac for about 3 months but am only 17. it is very hard especially as i have developed other medical conditions and diseases :(

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paggie304 said on 05 October 2010

I have been diagnosed a ceoliac for 9 years now as i am only 16 this is rather frustrating as i can not do the same things as my friends. Normal activities like going to pizza hut are not available for me as unless i eat salad there is no gluten free option. i agree with the first comment above that it has gotten easier though, sainsburys range is great but it comes at a price a simple packet of biscuits can range to £3.00 meaning they have to be bought as a treat. If you live in edinburgh their are some great restaurants such as "mamas" in the grass market who fully accomodate ceoliacs and i would highly recommend. I agree with the second coment above as i have also gained weight due to the increased sugar content in gluten free foods but there are hundreds of easy quick recipes which can be adapted so that they are gluten free also simple things like baked potatoes which i often find myself living of. This article is very helpful as it gives a brief honest outline about what the condition is. In reply to the above comment tehir are healthy cereals such as porridge and cornflakes available from scotmid and sainsburys they are slightly more expensive but worth the cost. I would recommend not going off the gluten free diet as i done this in an attempt to prove i had "grown out of it" but this is not the case i felt alot worse of after doing this and became very unhealthy and ill. i hope things get easier for you :) being a ceoliac is not all bad.

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PJ2010 said on 17 August 2010

Hi there,
I just read your comment (lilwead) and it's made me register to the site. I've been diagnosed coeliac now for about 4 years. At first, it was a nightmare, but after a while it just becomes part of your day to day routine, and I'm now by far at my healthiest.

If your having trouble, look for the book 'Gluten free for Dummies' - it's in the yellow 'for dummies' series. It saved my life in the first year - its got great tips and is really easy to follow and makes you realise that this is not the most difficult thing in life.

It's so important not to start eating gluten again. You may not have had many symptoms but I can tell you from experience they can come out of nowhere and they are not pleasant.

You will discover so many good foods that you can eat. For cereal, try doves farm cereal flakes (kinda like special k), or mesa sunrise flakes. 'Genius' bread is also amazing - my non-coeliac boyfriend often eats it instead of regular bread. What country are you in? If its the UK - go to a big sainsbury's - they've got good choice and most of the above.

I've also discovered so many easy ways to cook 'normal' food that just happens to be gluten free. If weight is an issue, for one meal try brown rice (or any rice) with pesto. and put in any kind of veg or meat as you like. (tuna / peas / peppers). its soo good, cheap, and so quick.

Finally, there are loads of restaurants out there now that have gluten free menus, and a lot of half-decent ones will know what you mean and cater for you.

Hope this helps. Hang in there - once you get used to it you'll become so much easier.

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lilwead said on 15 June 2010

Before diagnosis, I'd finally begun to lose the weight that had plagued me for years. I was eating healthily, grains and fruit etc. Only to find on a routine blood test that I was anaemic. I'm so upset and depressed that since going to a gluten free diet,I've put on more weight than I'd originally lost. I ate so much fruit and veg at the start of becoming gluten free that I feel physically sick sometimes at the thought of eating it. All I ever get told by the dietician or nurse and dr is 'that's the diet, stick to it', maybe in slightly different words. After a day working in a garden centre dealing with everything from plants to 1 ton dumpy bags of aggregate, I feel even more exercise is beyond me. I'm seriously considering giving up the gluten free lifestyle just so I can lose weight and save some money, due to most gluten free products averaging 4 x the cost of standard food. It is NOT an easy diet to follow when you're a reasonable cook, even worse when you loathe cooking as much as I do. I really don't have the time (or inclination) to stand there and cook from scratch when I get home from work 9.30 at night. I get certain products on prescription, but NOT a healthy breakfast cereal, why?. NICE has passed biscuits on prescription, but not pure uncontaminated porridge oats, where is the logic in that?.

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