Supporting someone with Parkinson's disease 

Tina has Parkinson's disease. In this video, learn about the people who have supported her and continue to help her live with the condition.

More information on Parkinson's disease

Transcript of Supporting someone with Parkinson's disease

What time is it now?

(woman) Eight o'clock I'm woken up with tablets.

It takes me anything from half an hour to an hour

to get myself up and dressed.

(man) I enjoy what I do. She enjoys the company.

I do hope I make a difference.

Adam stays here five nights a week

because that is the time that I have most of my falls.

I think Adam offers me the support psychologically as well as anything.

He is there and I know he's there,

so it means I can sleep without fear,

without fear of getting up and falling.

I can get up and move around and I know he's listening.

I'm responsible for her while I'm here

and that's why I'm here.

She's all right to look after

and at the end of the day there's trust between the two of us.

If we don't trust each other then it's not worthwhile doing it.

The team that make a difference to me are my carer, Adam,

my GP, that's Dr Balloch,

Bavni the pharmacist,

and the linchpin of all of that is Richard Glasspool, my Parkinson's nurse.

And when did you actually start taking the ropinerol medication?

- It's been just over a week. - Just over a week.

I think the team is vitally important

in treating Tina with her Parkinson's disease.

Although, as the nurse specialist,

I'm specifically concentrating on the Parkinson's disease,

I think everybody within the team,

the consultant, the GP, the therapy team, the pharmacist,

all have a part to play,

and I think without the whole team

then Tina's care would be very limited.

So we all work very much together

in trying to provide the best possible care for Tina.

..try and work on the restless legs and see if there's anything else we can do.

My pharmacist is brilliant.

She is... I say that about everybody, but they are. They're a brilliant team.

- Hiya. You all right? - Yes, thanks, love.

I think he's given me some new stuff. I'm not sure.

The pharmacist would tell her about any new medications

and there's instructions on the boxes as how to take each medication.

Anything that she should be aware of,

the pharmacist would come out and speak to her.

This new medication, you're going to take it the same time each day.

I think, with most patients, you build up a rapport with them.

Over the months you just build up a rapport with each patient,

especially ones like Tina.

- Is that OK? - Yes, we'll get them ready.

- Lovely. Thanks. - Thank you. Bye.

(Tina) I go out in the car, visiting friends.

I take my medication with me.

Then I get lost in the computer for a few hours answering emails.

I go on the Parkinson's disease forum

and if there's anybody asking any questions that I think I can answer

then I will put down my opinion.

The support people get on there

is generally from carers to Parkinson's patients or Parkinson's to carers.

It gives me satisfaction helping others and I get a lot of support.

Adam comes in and if I'm not up to doing something out of the freezer

he'll cook something or get a takeaway or something like that.

And then the routine starts again.

Bath, bed, tablets, sleep.

- Night-night. - Night.

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Care and support plans

If you're eligible for council support, you'll be involved in drawing up a plan for your future care and support