Julie Shrive said on 17 August 2012
I am outraged at the myths I see perpetuated by people & text books who should know better .As a results our Doctors do not have a clue.Surely an open mind & research is the answer.
I am an adult with the spina bifida that causes no problems? As a result I cannot access fair treatment & assistance as the system discriminates. Why children only ?
My spina bifida was found in my 20's relating to chronic utis & infections 3 weekly causing waits of 3 hrs + to access medication . I asked for research & got it & can attribute many other conditions to it such as poor mobility , breathing , heart feeling pain more intensely .I have encountered many poor souls on internet at wits end being pased from pillar to post.
Now OIam getting temporary acute pain & partial paralysis when utis out of control & suspect only minimally invasive repair or stem cells may resolve. Does system want to know they blame me for wanting to know procedure for next time as do not know what to do?So call out security when ask for the medical person in charge.
