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Patient Reported Outcome Measures (PROMs)

PROMs patient information

How will the data that I provide in the Before and After your operation questionnaires be used?

The information you provide on the Before your operation questionnaire will be used to retrieve your unique NHS Number from the NHS patient demographic systems.

The Health and Social Care Information Centre (HSCIC) holds a record of all hospital activity in the Hospital Episode Statistics (HES) system. HES contains details of all admissions to NHS hospitals in England. It includes private patients treated in NHS hospitals, patients who were resident outside England, and care at treatment centres funded by the NHS (including those in the independent sector). HES also contains details of all NHS outpatient appointments in England.

HSCIC will use the data held in HES and link it to the information you provided in the PROMs questionnaires. This will help the NHS identify the factors that explain differences in the reported outcomes of treatments.

It also means that we don't have to ask you for information that is already held about you by the NHS.

Data extracted from the HES will include details about previous operations, recorded diagnoses, hospital stay durations, recorded age, gender, or ethnicity if applicable.

If you've had hip or knee replacement surgery, your NHS number could also be used to extract data from the National Joint Registry (NJR). Again, the Health and Social Care Information Centre will use the data and link it to the information you provided in the PROMs questionnaires.

The NJR was set up by the Department of Health and Welsh Assembly Government to collect information on all hip and knee replacement operations and to monitor the performance of replacement hip and knee joints and implants.

A wide range of implants are used in joint replacement operations in the NHS and in independent healthcare sectors across England and Wales. The NJR helps to monitor the performance of these implants and the effectiveness of different types of surgery. This work helps to improve clinical standards and benefits patients, clinicians and the orthopaedic industry.

For more information, visit the NJR website

Will you be using all data that is held by the NHS about me?

Data is extracted from the HES or NJR on a ‘need to know’ basis. It will only contain information about your operation and the condition relating to it. Any information that could identify you will be removed by the Health and Social Care Information Centre (the data controller for this exercise) before it is used for analysis.

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Page last reviewed: 21/01/2015

Next review due: 21/01/2017

How to contact PROMs

If you have further questions about the PROMs programme, please contact the hospital where you received treatment. The Before Your Treatment questionnaire and the After Your Treatment covering letter will have further details.

The Health and Social Care Information Centre (HSCIC) and NHS England websites both offer additional information about the PROMs programme.

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