Disfigurement support groups

Disfigurement support groups offer support, information and advice on specific conditions that can cause disfigurement.

Acoustic Neuroma

British Acoustic Neuroma Association (BANA)
BANA offers mutual support and information to people affected by acoustic neuroma.

Allergies

Allergy UK
A charity for people with allergies, food intolerance and chemical sensitivity.

Alopecia

Alopecia UK
Alopecia UK provides information, advice and support for people with alopecia areata, alopecia totalis and alopecia universalis.

Bell's Palsy

Bell's Palsy Association
The only UK-registered charity dedicated solely to providing help and information to people with Bell's Palsy.

Birthmarks

The Birthmark Support Group
A UK-based support group for anyone with a birthmark.

Body Dysmorphic Disorder

The BDD Foundation
The foundation aims to increase awareness and understanding of body dysmorphia and also helps people affected by it to overcome the disorder.

Anxiety UK
The largest charity dealing with anxiety disorders.

Burns

The Burned Children's Club
The Burned Children's Club gives support to young burn survivors and their families.

The Children's Burns Trust
The Children's Burns Trust is committed to providing support for burn- and scald-injured children and their families.

Cancer (all types)

Macmillan
Expert information about all types of cancer, with cancer information specialist nurses who can answer questions by phone or email.

Cleft Lip and Palate

Cleft Lip and Palate Association (CLAPA)
Clapa is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate.

Craniofacial conditions

Headlines
Support for those affected by craniosynostosis and associated conditions.

Craniofacial Society of Great Britain
A society for the study of cleft lip and palate and other craniofacial anomalies.

Disfigurement

Changing Faces
Support for people who have disfigurements of the face or body from any cause.

Eczema

National Eczema Society
A patient support organisation offering help and information to everyone affected by eczema.

Eczema Voice discussion board
A site where people with eczema and their carers can share experiences and read other people's stories.

Epidermolysis Bullosa

DebRA
A UK charity for people with the genetic skin blistering condition Epidermolysis Bullosa (EB).

Goldenhar syndrome

Goldenhar Family Support Group (UK)
Support for families of people with Goldenhar syndrome and related problems.

Ichthyosis

Ichthyosis Support Group
A network of parents, medics and people with or affected by ichthyosis.

Limb loss

Limbless Association
Information, advice and support for people without one or more limbs.

Neurofibromatosis

The Neurofibromatosis Association
Help, support and advice for those affected by either form of neurofibromatosis and their families.

Pituitary disorders

The Pituitary Foundation
Support and information for pituitary patients, their families, friends and carers. Campaigns to increase public awareness of pituitary disorders.

Post-traumatic stress disorder

The United Kingdom Psychological Trauma Society (UKPTS)
Information for the general public and health professionals about post-traumatic stress.

Proteus syndrome

Proteus Family Network
A UK support group for families and individuals affected by Proteus syndrome.

Psoriasis

Psoriasis Help Organisation (PHO)
Help for people with the chronic skin disease psoriasis.

Retinoblastoma

Childhood Eye Cancer Trust (CHECT)
A UK-wide charity for families and individuals affected by retinoblastoma.

Scarring

The Scar Information Service
Providing information on scarring, scar therapies and support organisations.

Stickler syndrome

Stickler Syndrome Support Group
Information for families, healthcare and medical professionals affected by, or caring for, people with Stickler syndrome.

Sturge-Weber syndrome

Sturge-Weber Foundation
Support and information on different aspects of Sturge-Weber syndrome, a rare neurological disorder.

Treacher Collins syndrome

Treacher Collins Family Support Group
Support, advice and friendship for people with Treacher Collins syndrome and their families.

Vitiligo

The Vitiligo Society
Support for people with vitiligo and their families in the UK and the Republic of Ireland.

Xeroderma Pigmentosum (XP)

XP Support Group
Support for people with xeroderma pigmentosum and other related conditions and their families.

Last reviewed: 02/10/2012

Next review due: 02/10/2014

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Changing Faces awareness campaign poster

Facial disfigurement

Information and advice about building confidence and handling people's reactions for people with facial disfigurements