Diagnosis for children

Daniel Bullen, who has autism, photographed by Robin Hammond

Autism can normally be diagnosed in children at around the age of two.

In many cases, professional health workers may spot the signs of autism during normal childhood health checks and this may result in the child being formally diagnosed.

If you think your child may have autism, ask your GP to refer them to a consultant or diagnostic team with a good understanding of the condition.

The National Autistic Society (NAS) offers the following advice on the diagnosis of children.

I'm struggling to get a referral for my child.

If you're finding it difficult to get a referral for your child, being assertive and persistent can help. You might also find the following tips useful.

  • Before your appointment, prepare notes on what you want to say to your GP.
  • Keep a diary to record any unusual behaviour by your child and how often it happens.
  • Give your GP some information on autism from The National Autistic Society or encourage your GP to contact the society's information centre (0845 070 4004 or email info@nas.org.uk) if they have any questions about the condition.
  • If there is more than one GP at your practice, ask to see one of the other doctors.

Should my child see a particular kind of doctor?

There may be a number of different doctors and health professionals involved in diagnosing autism. Most often, these are psychiatrists, clinical psychologists and, in the case of children, paediatricians. In some cases, multi-disciplinary teams (teams made up of a number of different health professionals) may be involved in diagnosing autism. It is important to ensure that whoever sees your child has a good knowledge of autism.

Call the NAS Autism Helpline (0845 070 4004) for a list of doctors and diagnostic teams who have an interest in autism.

Does everybody with autism need to be diagnosed?

Many people with autism, and their families, benefit from having an official diagnosis of their condition. Having an explanation for the problems that a person may have experienced for many years can bring a sense of relief, for both the person with autism and their parents, particularly in the case of those at the more able end of the spectrum. It can also help them to get the most appropriate services.

The National Autistic Society's website has a range of diagnosis information and advice, which includes coping with a diagnosis and the effect on families.

Last reviewed: 26/02/2012

Next review due: 26/02/2014

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Comments are personal views. Any information they give has not been checked and may not be accurate.

Dave0875 said on 26 November 2011

PAINTER it all sounds too familiar, we started over a year ago to get a diagnosis for our 4 year old Daughter (to her advantage we've caught her early or so we hope). We were hoping to get things sorted out ready for her starting school proper september just gone. After Ed Psych and the school/LEA effectively pulled the rug from under our feet by effectively DENYING there was anything wrong with our daughter other than that all encompasing throwaway phrase 'developmental delay'. After an assessment by NHS Speech & Language my daughter fulfilled 10 out of 12 criteria requirements for referral for ASD (6 criteria is minimal requirement). unfortunately in Hull there is a 2-3 year waiting list for the ASD panel. So local Education authority representatives are next to useless so in the NHS we (have to) trust. Can anyone provide any help/encouragement or is it a case of keep going and bide our time.

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alfieraysautismawareness said on 17 March 2011

Mate its not too late for your son.. there is good help out there simple a good learing program can help but difficult to find on NHS.. they seem to hate it.. we are off to USA to growing minds... do some fund raising and take your son there.These people are the best using whichever therapy helps with coming to terms. I feel you pain mate as far as LEA, NHS go but never give up hope it can be improved upon not cured.

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painter99 said on 11 April 2009

I would like to say that my son displayed difficulties from around age 3 when he was still not speaking. He required speech therapy although in my opinion did not receive this for long enough. He made very slow progress with speech development. He displayed many difficulties at school. I expressed my concerns and got a referral to a Child Paediatrician who only checked to see that my son could do his shoe laces up. Nobody would take my concerns seriously. It was mentioned very early on by a family member that my son might be autistic. A teacher raised concerns in Year 2, although this was the only teacher to do so in the entire educational career of my son. Jonah was viewed by his peers as difficult, odd, and not quite fitting in. Severe difficulties started at secondary transfer and my son was on the receiving end of severe sustained daily bullying. He found it impossible to follow lessons and never was invited to other people's homes, nor did he bring any friend home. I asked for my son to see an Educational Psychologist because I considered that my son needed Statementing, but she stated that his needs were not serious enough. I did not agree.
Health professionals were not able to see my son's difficulties which manifested mostly in behaviour and lack of understanding as well as being obsessional/ritualistic. I had to withdraw my son from school for his own safety and as a result he has no GCSE's. My son was only diagnosed by an NHS provider last year aged 17yrs. He has been completely let down and so have we all as a family. Even when he did receive diagnosis by a reputable NHS provider, they did not state that my son would be entitled to Disability Living Allowance and a Social Worker. Are these benefits withheld on purpose? Thousands of pounds go unclaimed apparently each year, but no-one told us to apply for the benefits until this year. The neglect is awful and I am now unable to proceed with my life in a normal way. My son has been neglected.

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