Endometriosis 

Introduction 

Endometriosis

Endometriosis is a common condition in which small pieces of the womb lining are found outside the womb. Find out what the symptoms and treatment options are, who is affected by it and how to cope with the pain.

Michelle Middleton

Life with endometriosis

Michelle, a mum of two, describes her experience of endometriosis, her symptoms and her treatment

Endometriosis is a common condition in which small pieces of the womb lining (the endometrium) are found outside the womb. This could be in the fallopian tubes, ovaries, bladder, bowel, vagina or rectum.

Endometriosis affects around 2 million women in the UK. Most of them are diagnosed between the ages of 25 and 40.

Endometriosis is a long-term (chronic) condition that causes painful or heavy periods. It often causes pain in the lower abdomen (tummy), pelvis or lower back. It may also lead to lack of energy, depression and fertility problems.

However, the symptoms of endometriosis can vary and some women have few symptoms or no symptoms at all.

If your GP suspects that you have endometriosis they will refer you to a gynaecologist (specialist in the female reproductive system). The gynaecologist may carry out an examination of your fallopian tubes, ovaries and womb, known as a laparoscopy, to check for patches of endometriosis.

Read more about diagnosing endometriosis.

What causes endometriosis?

The causes of endometriosis are not fully known, but there are several theories. The most common theory is that the womb lining does not leave the body properly during a period and embeds itself onto the organs of the pelvis. Doctors refer to this as retrograde menstruation.

The endometriosis cells behave in the same way as those that line the womb, so every month they grow during the menstrual cycle and bleed.

Normally, before a period, the hormone oestrogen causes the endometrium to thicken to receive a fertilised egg. If the egg isn’t fertilised, the lining breaks down and leaves the body as menstrual blood (a period).

Endometriosis tissue anywhere in the body will go through the same process of thickening and shedding, but it has no way of leaving the body. This leads to pain, swelling and sometimes damage to the fallopian tubes or ovaries, causing fertility problems.

Treating endometriosis

There is no known cure for endometriosis. However, the symptoms can often be managed with painkillers or hormone treatments, which help prevent the condition from interfering with your daily life. Surgery can sometimes be used to improve symptoms and fertility.

A healthy diet can improve energy levels and help regulate bowel movements and sleep patterns.

Pregnancy sometimes reduces the symptoms of endometriosis, although symptoms often return once the menstrual cycle returns to normal.

Read more about how endometriosis is treated.

Endometriosis can be a difficult condition to deal with both physically and emotionally. Charities such as Endometriosis UK and the SheTrust can offer advice and support to help you cope.

Endometriosis and pregnancy

One of the main complications of endometriosis is difficulty getting pregnant, or not being able to get pregnant (infertility).

Surgery can improve fertility by removing endometriosis tissue, but there is no guarantee that this will allow you to get pregnant.

Endometriosis is unlikely to put your pregnancy at risk. However, there is some evidence to show that women with endometriosis are slightly more at risk of complications during pregnancy such as pre-eclampsia, a premature birth or the need for a caesarean section.

Read information about how infertility is treated.

Last reviewed: 26/01/2012

Next review due: 26/01/2014

Comments are personal views. Any information they give has not been checked and may not be accurate.

0xashleex0 said on 09 May 2012

This is for Louise... i am going through the exact same thing! I was admitted to hospital in March after having my implanon taking out in February of this year... they thought it was appendicitus and then kidney failure... they ended up treating me for pelvic inflammatory disease but when speaking to doctor they said that due to swabs coming back and me never having a std it was not this... i am in constant pain all the time and have to rely on neropam to touch the pain... my doctor has me on about 15 tablets a day and i am still no further forward... all i want is to know whats wrong but they keep saying its no a gyne problem first of all after me being discharged from hospital after 4 days in... went back today for different tablets and help as i feel sick when i eat and when i do i look pregnant! not the best... If you find out any information please let me know as i think we are going through same things... thanks Ashley, 20 x

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amberg7 said on 01 May 2012

Endometriosis,I don't know how much more i can take. Have had this from i was 15 now 36,running to gynae half my life and still no further down the road. Have suffered from severe depression for the last 10 years because of chronic pelvic and lower back pain caused by my endo and have gained alot of weight. Gynae have refused to operate this time until i lose weight due to complications. Please i need some strength from somewhere to motivate me to lose weight,i really need this operation! Endo is in my nose now aswell,it is so painful the adhesions come every month and bleed,it's agony. Help me be strong!!!!!

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Wiggs84 said on 28 April 2012

after reading some of ur comments.im glad im not alone. i have been a carer in acute setting for years and now am a rehab assistant. and it still shocks me how professionals can fob you off in different ways.
i have always suffered with painful periods, i went on the pill at 16. and was on it a long time. i decided to have a break and for the 2yrs i did it was auful. i had 2 period a month,14day one etc. i thought this was normal. but the pain was hell. i was living off femifax as only thing that touched the pain. i went to doctor i was with then who said she thinks i have endometriosis.this was 3yr ago.gave me no advice on how to deal with it. i went back on pill. things were better,
but then january 2010. on a period i was having terrible pain dizzyness, they took me into too hospital and queried appendics, but i knew different. however they took them out as they were slightly inflamed. then this year i changed from yasmin pill to microgynon. half way threw packet in march had a period, then once finished packet had another. just before easter had shooting pain low in belly from either side (similiar to pain before appendics were removed) but with a pulling sensation. belly started looking like 3months pregnant. couldnt get appointment at doc, saw two doc in community who tested pregnancy etc. both just gavestrong pain killers and said see gp.i got sent home from wrk thursday, easter friday came black discharge followed what seemed like a period. finally after 6days of hardly being able to walk. doctor done swabs while pulling faces,and tried to tell me it is the pill. and maybe i shud come off it. i said it will be worse trust me. swabs were cleared and belly gone downn i have feeling ovarian cyst. so far had 2 periods in march and april.and just tired all time. i am in pocess of changing doctor surgery, and hope i will get to have a scan at some point. thank you for taking time to listen to my story. louise,27.

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crispnm said on 08 September 2011

i had my laperoscopy done on the 18th of last month and am still stuffering major pain, they removed my endo but im really scared of what is still wrong with me i have been bleeding heavily and been back to the doctors 5 times since my operation. I am being refered to have an endoscopy done now aswel to discover what else is wrong!

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TMart20 said on 28 June 2011

I was diagnosed with endometriosis 6 years ago, at the age of twelve. Wasn't exactly the best news I've ever heard, especially as every time I have the patches lasered away the pain always comes back within a year. Unfortunately I don't think it will ever go away 100%, and the pain has had a severe impact on my education. The sooner a cure, or more permanent solution to getting rid of it is found, the better.

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mummyamy182 said on 24 April 2011

i have been suffering with severe pain and as of yet the hospital havent diagnosed anything. i ended up in hospital for 4 days last week and they still found nothing. i was doing research online and found endometriosis and i think this may be what i have but how do i go about getting this checked?

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freyamac said on 21 January 2011

I had my endometriosis treated at Stepping Hill Hospital with a Dr who was absolutely amazing, he made me feel reassured and really cares.
I had surgery to have it removed, and over a year later it still hasn't come back and my life is so much better now.
Mine started in my teens and got progressively worse. My symptoms were like a 'shock' feeling up my backside when I went to the toilet and after that could not sit down.
I cannot thank the staff on the womens unit enough, great people.

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TerriBerry said on 08 July 2010

hi i am only 16 i started my periods when i was 10 the pain was realy intense back then but as i have gotten older the pain has gotten alot worse 3 weeks ago i went to the Dr's to tell them what was wrong. 1 week later i was in the hospital having swabs taken, 8 days later i had my pre ops done, On Tuesday 6th July 2010 i had a laperoscopy as they where concerned as to what was happening inside, And what they found WAS GRADE 3 ENDROMETRIOSIS as i am only 16 me and my family being my mum dad gran exc are very scared and concerned i had been laserd that day aswell.

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kaucee said on 01 May 2010

they will try Hormone tablets or injections to see if this will help, if not they can remove it by burning them off this helps but can come back.
i know as i was under the best that specialises in endometriosis.
but you have to push for it at some doctors
my has returned but my doctor keeps fobbing me off despite i was promised if it comes back i will not have to spend another 10months proving this and will got straight back for my treatment not on the hospital waiting list either, as i would be a returning patient not a new patient.
so if your in load of pain seek to see the specialist
the pain and you can get back on with your life
don't leave it as 1 women actually had to have her left side of her womb totally removed.

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kaucee said on 01 May 2010

they will try Hormone tablets or injections to see if this will help, if not they can remove it by burning them off this helps but can come back.
i know as i was under the best that specialises in endometriosis.
but you have to push for it at some doctors
my has returned but my doctor keeps fobbing me off despite i was promised if it comes back i will not have to spend another 10months proving this and will got straight back for my treatment not on the hospital waiting list either, as i would be a returning patient not a new patient.
so if your in load of pain seek to see the specialist
the pain and you can get back on with your life
don't leave it as 1 women actually had to have her left side of her womb totally removed.

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