Living with a malignant brain tumour 

Living with a brain tumour is not easy. The future can look very unpredictable and the unknown can be frightening.

As well as medical worries about tests, treatments and side effects, it's also common for people to worry about life’s practicalities. For example, you may worry about who will care for your family when you feel too ill to do so.

This panic and anxiety is a natural response and one that will affect everyone concerned. Changes in daily routines and responsibilities are often necessary and this is something that involves the whole family. Try to ensure that everyone knows what's happening and has an idea of what to expect.

The following are a few suggestions that may help you, your family and close friends deal with the changes in your lives:

  • Seek accurate medical information about the disease and your treatment options.
  • Make sure you are involved in decisions about your care and treatment. This can help to dispel the fear of the unknown and the feeling that you do not have any control of what is happening to you.
  • Take a notepad with you if you find it difficult to remember questions and the answers, and write things down to refer to later. 
  • Set your own limits according to how you feel. Do not push yourself to perform at the level you were before the diagnosis and think you have to carry on as usual. 

You can read more about living with a brain tumour on The Brain Tumour Charity's website.

Support for carers

Being a carer is not an easy role. When you are busy responding to the needs of others, it can deplete your reserves of emotional and physical energy, and make it easy for you to forget your own health and mental wellbeing.

Research on carers’ health shows that high numbers of carers suffer health effects through caring. If you are trying to combine caring with a paid job or looking after a family, this can cause even more stress.

However, neglecting your own health doesn't work in the long term. If you're caring for someone else, it’s important to look after yourself and get as much help as possible. It's in your best interests and those of the person you are caring for.

For more information on the support available to you and benefits you may be entitled to, visit the care and support section of this website.

Page last reviewed: 19/03/2015

Next review due: 19/03/2017