Underactive thyroid (Hypothyroidism) - Complications 

Complications of underactive thyroid 

Several complications can occur if you have an underactive thyroid that is not treated.

Heart problems

Having an untreated underactive thyroid can increase your risk of developing cardiovascular disease (disease of the heart or blood vessels).

This is because having low levels of the hormone thyroxine can lead to increased levels of cholesterol in your blood. Having high levels of cholesterol can cause fatty deposits to build up in your arteries, restricting the flow of blood.

You should call your doctor if you are being treated for an underactive thyroid and you develop chest pain, so that any problems can be detected and treated if necessary. 

Goitre

goitre is an abnormal swelling of the thyroid gland that causes a lump to form in the throat. They can develop in people with an underactive thyroid when the body tries to stimulate the thyroid to produce more thyroid hormones.

Pregnancy complications

If underactive thyroid is not treated during pregnancy, there is a risk of problems including:

These problems can usually be avoided with proper treatment by a specialist, so you should tell your GP if you have an underactive thyroid and you are pregnant or planning a pregnancy.

Myxoedema coma

In very rare cases, a severe underactive thyroid may lead to a life-threatening condition known as myxoedema coma. This is where the thyroid hormone levels become very low, causing symptoms such as confusion, hypothermia, and drowsiness.

Myxoedema coma requires emergency treatment in hospital. It is usually treated with thyroid hormone replacement medication given directly into a vein. In some cases, other treatments such as mechanical breathing support, antibiotics and steroid medication (corticosteroids) are also required.

Page last reviewed: 02/07/2013

Next review due: 02/07/2015

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The 49 comments posted are personal views. Any information they give has not been checked and may not be accurate.

Kpaterson94 said on 29 August 2014

I went to the doctors twice now and they said my reading was fine. I am still low about life and I feel trapped. Everything is going well in my life but yet i break down all the time, and feel the worse is always going to happen to me and in a way very worthless. I feel extremely tired all the time and my head constantly feels heavy and fuzzy. I feel at breaking point with this! I now get panic attacks and get a tight chest in social situations and many times cannot sleep for 5 days straight. if anyone could give me any advise to feel better it would mean a lot, i know that this is related to my thoyid as i still feel that way before i even took the tablets. Its not how a 20 year old should feel!

Thank you for your time and answers x

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harrogate02 said on 13 August 2014

It is really comforting to read other peoples experiences with the underactive thyroid problem. I was diagnosed 7 weeks ago after visiting my Dr I dont know how many times to say I was unwell. It was my age (49) it was my job,I was depressed,I was over tired..all suggested by my Dr! I insisted on a blood test. Not only did I have underactive thyroid I was also anemic and had low blood count! No wonder I felt ill!
Im still struggling to get through a day...still very tired and muscle ache and cold! I go back to see my Dr in 3 weeks hopefully to receive the news Im getting better.
So what Im saying is..you know if you dont feel well,not yourself and something is wrong..keep pestering your Dr..eventually they will listen.

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Mcstu said on 09 August 2014

Better gp training about thyroid disease and better options for patients with medications. And a huge issue is the ridiculous doses which really sorting out too!

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Mcstu said on 09 August 2014

Hi I just wanted to comment after reading through all the posts regardless of how old they are, I have found them very helpful. However a little disappointed to read two rather patronize ing comments left by people who clearly haven't had a rough time with their thyroid issues! I think from all the research I've done since being diagnosed just under a year ago now, no two people experience the exact same things and medications can vary from person to person as well as dosages so I think its important to have more understanding! I am finding myself feeling pretty disappointed with my experiences with my gp. I've already changed surgery after I went for two yrs undiagnosed. I was very annoyed because mine started either during pregnancy or just after leaving me in able to breast feed and my son has mild physical problems which I can honestly say I'm unsure was this caused by my failing thyroid? I will never know! I spent 2 yrs really Ill with it putting my partner under lots if pressure at work and finally after printing out a book full of evidence to present to my gp he diagnosed me there and then and started me in only 25mcg levothyroxine this wasn't enough but I stuck with it for 6/8 mths still struggling. He insisted my levels were normal but I was still have periods each fortnight which were much heavier and painful, exstreme pins and needles tiredness and needed silly amounts of rest mood problems and the list goes on! I eventually decided to up my own dose to 50 mcg and my periods levelled out I still have symptoms which im struggling with a d I suspect I need a higher dose still but I'm now insisting on print outs I my results to assess them properly myself what I'm finding is my tsh levels are still not right but my t4 is ok. Do not trust everything you are told if you don't feel well you have to either fight or monitor your own medication and results. Its very sad that this illness us not being taken more seriously with better. Continued ...

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lindsyxxx said on 29 July 2014

hi my name is lindsy i was diagnosed with an under active thyroid about 2 years ago and im currently on levothyroxcine i keep getting pains in my chest and arms, left shoulder and generally feel shocking is this normal :(

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User852965 said on 09 March 2014

I was dreadfully ill to the point of being disabled on Levothyroxine and after much begging my GP allowed me to have Armour Thyroid, I have been so well on this treatment which is available on NHS prescription, if you are being treated for things like Fybromyalgia then please look at Levothyroxine side effects as this medication could be the cause, many GP's don't know that Armour is available on prescription so please enlighten them! Thyroiditis is so underestimated and so much more unpleasant when it is not being managed well.

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Lisa4563 said on 08 January 2014

Hey for all of you on synthetic thyroxine and having bad or no results, here's a good article on the alternative medication of natural dessicated thyroid: http://thyroid.about.com/b/2009/01/27/the-desiccated-thyroid-controversy-why-endocrinologists-dont-like-armour-thyroid.htm

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charliecox said on 10 December 2013

Hi everyone. I just wanted to post a comment to reassure people, especially teenagers.

I'm 21 years old and was diagnosed with an underactive thyroid when I was 15, after feeling really down and tired. The docs originally thought I had glandular fever for a 2nd time, but after 6 blood tests they found the source of the problem.

I was a very skinny child so they thought I'd originally had an over-active thyroid that had burnt itself out. But hypothyroidism runs in my family as my dad, grandad and cousin from the same side all have it.

After 2 years, my dosage was increased to 100mg and im still currently on the same dosage. I'm a professional dancer so must stay in shape, and I only recently started gaining weight, but now I manage that by going to spin classes, swimming and having a balanced diet.

My advice to anyone who's been newly diagnosed is that I find its very mind over matter. No matter how much your body aches or how tired you feel....exercise is a must! It puts me in a good mood, make me feel more awake and keeps the weight off. And also, keep taking your meds. When I was 18 and indestructible (lol) I stopped taking the levothyroxin for 6 months because I 'couldn't be bothered with them' and it sent me right back to square 1.

So chin up and take the meds! It could be worse.

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bevgoige said on 21 September 2013

Been on thyroxine 25mg for what my doc calls subclinical hypothyroidism......been taking thyroxine for 12 days and actually feel worse than ever, palpatations, tremours and thinking very dark thoughts I never had before. Docs think its all in my head and keep trying to put me on anti depressants which make me even more breathless. And depressed! Help! Any advice, do I stick with the thyroxine or ditch it???

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Frangipange said on 12 August 2013

I'm in my 30's as was diagnosed just before my 30th. I found that when I started to take my Levothyroxine I was completed exhausted sleeping for 10 hour stretches. After 4 weeks or so it settled out.
I still get tired and fuzzy thinking more so than before i developed it.

I've since started taking liothyrine and I find it much better than Levo. on its own but I'm not back to how I was.

In the last year (at the unofficial suggestion of my GP) I started following the Harcombe diet. The diet has helped me lose weight but more importantly has alleviated my thyroidism symptoms. I now have more energy and I'm more awake.

I still get muscle cramps and still struggle to sleep, but it's not the end of the world.

I just wanted to share because the dietary changes have made me feel like a different, happier person as a consequence.

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mrsjmorrison said on 24 July 2013

Washealthy I am the same. I went to the drs because I was getting my period every 2 weeks but had just had a baby 9months ago so thought it might be to do with that. Dr checked my thyroid and said it was under active. I started taking (dosage edited) last week and I'm a totally different person. Not in a good way. Other than my periods I was fine. I was really active chasing after 3 small children. Now I cant seem to get out of bed. My left shoulder aches and I feel constantly shattered. I am so moody I am always shouting at my husband and my kids which I never used to do. I feel so depressed, I am breathless and cant go anywhere without my inhaler which i hardly used previously. I just want to be the old me

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Tanya40 said on 17 July 2013

Hi All,
I been taking thyroxine for 15 years, starting at 25mg I'm currently on 250mg and still no change!!!
Any suggestions? ??

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washealthy said on 13 June 2013

i was diagnosed hypo 4 weeks ago and put on 25mcg levothyroxine, within one week, my left shoulder ached and next day hand was aching, within another week left hand had turned into a claw. Aches and pains started in my other shoulder and then i began to lose use of right hand. Also developed aches and pains in knees and feet. Been back to doctor 2x and A& E once, waiting for referral to hand surgeon.. Before diagnosis I had not been to doctor for 7 years. Only found out about being hypo after blood test because hadn;t been to doctor for so long. Had no symptoms before, and felt great , but now feel like I'm disabled- are my symptoms side effect of levothyroxine. Anyone else had anything similar?

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captainjack said on 19 May 2013

well done lilly47 you said what i wanted but better
its not the end of the world so lets stay happy ..thank you for that comment

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lilly47 said on 16 May 2013

Hi, I created an account so that I could post a comment. Some of these accounts sound so sad, but really having an underactive thyroid is not the end of the world. In the great scheme of things that could go wrong this is managable. I was diagnosed 16 years ago when my daughter was six months. It is annoying to have to get tested every six months or so, especially as it almost never changes, I was on the same dose (100) for ten years and now have been on alternate 75/100 for six years. The weight is a pain but managable, in fact it forced me to take up exercise which changed my life and I am now slimmer and fitter than I would ever have otherwise been. I have bad days, and it gets harder as I get older, but seemingly it does for my friends who don't have underactive thyroids. Don't see it as a disaster. Take the pills, have it checked, read up on what is happening then live your life. Don't let anything stop you. It might be harder work at first but the best things are worth fighting for and you are worth fighting for.

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AngJC said on 15 May 2013

Hi Carlzz14 & Calendar 2008

I was diagnosed with an underactive thyroid 10 years ago and take 100mcg thyroxin per day. I was pregnant at the time of diagnosis so my thyroxin levels fluctuated in the early years.

The medication will quite quickly sort out your levels but it takes time for your body to re-adjust and for that to filter through to your overall sense of well being.

However, don't sit back and wait for this to happen. Buy or borrow a good book on this issue and read up on the things that you can do to improve things.

I stick to a diet that is low fat but gives me energy. I eat small meals regularly which seems to help and take lots of cardio vascular exercise to boost my metabolism.

Although I get tested each year and my levels never seem to change much - I know that at various points in the year my thyroid function can take a dip. Usually because I've had a virus and feeling stressted at work. So keep a note of how you feel and when you feel bad - this might be because you have other issues such as an illness, higher stress etc. These can all have an impact.

I always struggle to loose weight and have accepted that this is difficult to do with a condition like this but it is not impossible. Exercise can play a really helpful part. I'm 45 and weigh 10st so not overweight but do have to work hard to stay at this weight as gaining a few pounds is very easy to do.

Your feelings of depression or just feeling low may take time to improve but they eventually will. They also might well be caused by your overall anxiety about your heath and personal situation. It might be worth speaking to a councillor or ringing a help line to talk these issues through.


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Calender2008 said on 22 April 2013

Hai carlzz14,
I am 33 years old..
I came on here looking for some kind of reassurance that I m going to be ok..I was diagnosed hypothyroid earlier this month, had the blood test because I was feeling very unlike myself since I had my second baby in December 2011..
Put on so much weight but not feeling upto anything..exercise or diet.. Just stayed on the sofa most of the time..
Felt sad & depressed most of the time..
But couldn't talk about it to my partner because he will never understand how I am feeling..would just say that I am useless & lazy..

I am on 50 mg of levothyroxine.. But feel no better so far..
I was wondering if its me feeling that way.. Or is it that I am just demotivated to do anything!!
I don't want to be ths way... I want to lose weight & be active...

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carlzz14 said on 18 April 2013

Hi,
Seems these posts are quite old I hope that someone else feeling simular to me reads this..I was diagnosed 4 weeks ago I was put on 50mg of levothyroxine other than my swelling in my throat going down I just felt awful..I went to gp's today and without a blood test has put me on 100mg, so im hoping a change shortly from the slogginess, afternoon nap state, depressive moods and lack of life in general, considering I have six kids two dogs and an un supportive hubby ive been checking out the marvelous world of google to end up here seeing that im not mad,has made me have a sigh of relief. Im 34 and normally size 12 but after having my sixth child I realised considering my appetite is not that great that 15months on im a size 18?? Its soo horrible feeling so rubbish that because I have no bandage/ broken bones or bruising makes it harder to explain that my kness are hurting my chest feels its gonna explode and I could sleep during day and not of a night quite easily makes it seem im exaggerating and lazy...can make things soo frustrating ..my husband thinks I dont want him anymore but seriously the thought of anything containing affection makes me cringe as im soo irritable and my 'libido' is next to none I just want to see if recently there are others going through this ???thanks carlzz

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simoneeze said on 31 January 2013

Hi i only found out that i had a underactive thyroid last summer and now am on 50mg of levothyroxine because my levels were low but now after taking them for a few months now they are back to normal but my symptoms are just as bad like my tiredness is off the scale because i can sleep all day and sometimes all the night and my skin is really dry that i use a cream to try and help, my weight is going no where and the pain i am in with the different parts of my body is a nightmare on top.
Will it get any better i am thinking and why is it that my symptoms are no better when my thyroid level shows normal.

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lorns1 said on 18 January 2013

i was diagnosed borderline underactive around 10yrs ago no meds offered until 6yrs ago when i moved .. i have been constantly ill for most of my life weight probs (difficult in loosing) always catching infections i was put on 25mg raising to 75mg, last yr it was thought i had a tumpur but it turns out to be my thyriode i have now been diagnosed with Hashimoto's diseease, has anyone else gone the long way around, i just wonder why we are not screened or the bloods are done properly to rule this out
what's the difference between the blood tests, also my cholesterol has ben rising and i eat a healthy diet and exercise, would i be right in thinking its the thyroid condition that can help cause this?

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artysmum said on 07 January 2013

These posts are all interesting. I have had an underactive thyroid for many years and did not feel at all well until my thyroxine dose was raised to 200. This has kept me steady for the last 8 or 9 years but suddenly my doctor has changed her attitude entirely and says I am overdosing. I have no overdose symptoms, my readings are the same as they have been for years and when I tried to reduce the dose I became so depressed I couldn't cope at all. Now I am on a slightly reduced dose which just about works for me although I have lost a lot of hair since reducing it. My doctor will not explain why she seems suddenly so worried about it. She's a great doctor, so what has changed and why can't I be told? I wish there was some NHS feedback to the comments left here. It sounds as though many patients (and doctors) are still in the dark about this condition and it's effective treatment.

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the_slush said on 13 December 2012

Xxjalo1999xX my heart goes out to you. I was born without a thyroid gland and have been on various amounts of thyroxine depending on how much ive grown. Without taking it I feel depressed, lethargic and at my worst suicidal.
All I can advise is to go straight to your doctor so they can advise the right amount of mg's for you. You won't be depressed your entire life as long as you get the dosage right.

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craftingbird said on 01 December 2012

I have been underactive since my teens but was not diagnosed until i was 38. I am now 58 and on levothyroxine. My GP informed me 6 months ago that govt guidlines have changed on the readings from blood tests and reduced my thyroxine, even tough its been obvious over the last 3 years that I am absorbing less... I have looked into natural dessicated thyroxine as an alternative, only to be told he is not allowed to prescribe it because its too expensive. I have priced it up, it's not that dear and I would be willing to fund it myself but I need a prescription! Please can anyone tell me how I move forward from here? Cx

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Simmonds11f said on 29 October 2012

Hi all very new to this. Was diagnosed in June with under active thyroid. Can't say I felt unwell apart from lumpy feeling in my throat. Went to see GP has ultra sound done which showed swelling they say with no sinister signs. Had blood done normal t3 and t4 elevated TSH of 112 was stared on 50mg of thyroxine that was in June.

After a Couple of A&E visits with palpitations and lightheadedness told again normal t3 & t4 with still a high TSH of 33. ENDO dr upped thyroxine to 75mg. Which has brought TSH down to 19.

Since starting thyroxine can honestly say I feel worse. aches and pains , nausea, Mood swings anxiety I could go on.

Back to ENDO DR 15 November hoping to get some answers.

Don't want much just to be able to go about daily life and start to fell human again.

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Xxjalo1999xX said on 27 October 2012

I was born with no thyroid gland, i am only 13 so i didn't know the symptoms i would be experiencing. I have been feeling really depressed so i researched the symptoms and it says i will experience depression. So does this mean that i will always feel depressed??? because i am sometimes really happy but then i will become too depressed. I that how my life will be?? Will i be a mixture of depression and good moods?

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Cas155 said on 07 October 2012

My husband was diagnosed with underactive thyroid. He was put on 100mg thyroxine. He had 6 weeks off work and after a phased return was like a new man.A year on we are back to square one, the worst of the symptons being depression and not sleeping at all. He has been signed off work again. Diagnosis this time- depressiona and stress from work. He has been put on anti-depressants and sleeping tablets!!!! Non of these are working. I am convinced his levels must be wrong but after blood tests the doctor insists he must reduce his stress and that his thyroid levels are fine!
Has anyone had the same response and how do we get the doctors to listen?? My doctor is great but they seem to get stuck on depression, he feels so bad. I just want my lovely husband back.

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bev1088 said on 22 September 2012

can anyone help i was diagnosed 3wks ago and some of the web pages are scary im 44 and am trying for a baby but im not ovulating which is why i went can i even have a baby now ? my age and size already go against me just feel so disheartened at the moment doctor has told me nothing can anyone help please

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Finabug said on 31 August 2012

Hvaing re-read all of your comments I must also say that my short term memory is awful and I am now losing my hair! Let's hope after my parathyroid glands are sorted and my throxin is checked after all has settled down, this will improve!!!!

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Finabug said on 31 August 2012

I was diagnosed with an under active thyroid gland 2 years ago. Having been to my GP for 10 years prior to this with symptoms it was then only taken seriously and diagnosed, when I had no voice (not good as I am a Teacher) I have been on varing levels of Thyroxin for the last 2 years and have felt much better, but not quite right! The hospital where I am being treated discovered raised calcium in my blood and now after numerous tests, I am due to have surgery to remove overactive Parathyroid glands. As the symptoms are similar to those of an underactive thyroid gland ,I am grateful for their persistance in helping me lead a normal life as I still was/am feeling very tired but never thought it was something else. Persevere if you still don't feel right!!! Looking for the parathyroid glands,the consultant radiologist told me that my thyroid is very small and that I have probably had this problem for 10-15 years and have nodules growing on the gland. I wish I had been more forceful with my GP when I felt so bad rather than being fobbed off with It's your age, you need better hand cream and eat more greens,full time job etc!!!! My daughter is now a medical student and has shown photos of me before and after diagnosis to warn her fellow students of the effect the Thyroid gland can have and why it really should be taken seriously in women over 50. I really do feel cheated of 10 years of my life ,especially as I had my children in my mid late 30's. If you feel things aren't right and only you know, persist!!

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elliemae59 said on 17 July 2012

I have been presribed levothyroxine for an underactive thyriod which was diagnosed in March this yr.since. My GP increased my does from 25mg to 75mg. because my count had not increase in the last 4mth. I now find I'm sweating to much, I cant even have a hot drink without breaking out in a sweat, which makes me look like a lobester and as if I had just washed my hair. I didnt have any side effects with 25mg. I have to walk about with my coat off even in the cooler periods of the summer we've had so far. Will it settle, I don't know. But I do find my energy levels have increased. you have to sometimes take the rough with the smooth. Hopefully my weight will decrease eventually as I had put on 3 stone in 4months. So I say thank you to the Dr's and GPS who are trying to help me. It isn't always easy. Thank goodness I wasn't born 200 yrs ago.

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tootired said on 01 July 2012

Very interesting comments on here. I came across this page after stricktly dieting and excercising for the past 2 weeks and somehow gaining yet another 2lb. That is 3st 7lb in total over the past 18 months and I hardly eat a thing. I have been diagnosed with CFS/M.E. because of my symptoms but a lot of them sound similar to this. Yes my thyroid function has been tested and I have been told it is ok. Interestingly though my B12 is not ok. I think another trip to the GP is in order and some insistance that my thyroid is treated hopefully before I reach the stage where the fire crew have to come lift me out of my bedroom window.

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User689846 said on 25 June 2012

Hi to everyone on this site. Have you had your vitd, folate, ferritin, iron and b12 checked. you should get these things done and get a copy of your blood results and check to see if your results are all in the top of the ranges because if they are not then that could be stopping your from feeling better. You have to ask and maybe even beg for these bloods done, and then be told that they are irrelevant to your thyroid , which is rubbish. They are all connected.

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Malliosoh said on 22 June 2012

@MCG82 Hi, I just wanted to say that I am having the same issues since dropping from 100 - 75mcg of Thyroxine. My cognitive and short term memory is terrible!
I thought Centrum Advance would help but no. I am scrutinizing my diet to see if that helps. I am becoming very concerned at the moment with my mental state.

I wish you good health!

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MCG82 said on 13 June 2012

I was diagnosed with underactive Thyroid at the age of 27 (after fainting twice). Now at 30, I am treated with 75mg of thyroxine. But I am noticing that it has mainly impact on my brain. I started to be forgetfull and confused. I think I developed verbal apraxia and I am starting to have speech problems. I find it difficult to concentrate and I get tired. I've always been able to learn everything really quickly and now I am finding it really difficult. My tests seem fine. Is there anyone who has similar problem or knows anything about this? I am not sure if the problem is only thyroid or whether this could unveil anything else....

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davidr62 said on 30 May 2012

I was diagnosed in 97 was put on 150mg but had impossible chest pains following day, reduced to 75, now after several years having been diagnosed with all sorts including depression/tiredness/sleep problems/low temp/, I am up to 87.5 from experimenting, doctor keeps suggesting increasing but I keep trying and getting chest pain. Doc sent me for chest check and I came out as no problems, ECG fine and Overall fitter than someone my age (50), am now awaiting a hospital app. to see a specialist again, only this time I go prepared with all the other possible causes/symptoms/problems. eg. Adrenal glands/Pituitary glands/Parathyroid glands etc, none of which have been checked in all these years, because doctors are to stupid to think beyond their basic training, which tells them once you are on thyroxine and within their 'normal' range you are OK and it is all in your mind. I have never felt normal all the years i have been taking thyroxine and probably some 25 to 20 years before! I have read and absorbed loads but it is all american based and nobody in the UK seems to accept their findings or treatments. Why?

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hayley64 said on 12 May 2012

I agree with Emma,i have had an under active thyroid for about 9 years,my levels are up and down all the time,never feel totally well,always tired,have mood swings,depression,have tried a few anti depressants but never work. I have tried a lot of tablets from the health shop to give me energy but not of them worked,i just want to feel well and normal again!

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You are what you eat said on 18 April 2012

I've read through some of the comments below and other pages and it appears that no one knows about the book: Why do I still have thyroid symptoms? - when my blood tests are normal... by Datis Kharrazian. I too have hypothyroidism and have had a call from my doctor that my medication needs to be increased. The book, which I am trying to finish before seeing my doctor, explains that the vast majority of hypothyroid cases are being treated incorrectly or are being misdiagnosed. There are answers in this book to address what really causes hypothyroidism and how to manage it - possibly in some cases without drugs! Hope this info will help some of you out there.

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christopher5162 said on 08 April 2012

To all with thyroid problems.
I have recently been reading up on 'thyroid and the affect of amalgum tooth fillings. I am amazed that the NHS allow these fillings as the mercury effects several glads and production of hormones. I have been told by health professionals that these filling are safe; but I have also found out that certain foods break down the fillings and releases mercury into the body which accumulates and does not get expelled from it.

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christopher5162 said on 08 April 2012

To louby83, (05/12)
I had an undiagnosed overactive thyroid from 16-21 years old; a partial thyroidectomy at 27 and suffered an undiagnosed underactive thyroid from 35-40 Years old. I find 125 mg of thyroxine eventually results in underactivity and 150 mg eventually result in overactivity. I am still trying to balance things out. Also my throid function blood tests give false readings.

My advice to you is firstly ask to see a consultant if you are not already seeing one and insist that after this length of time you should be feeling some benefit of the hormone replacement.

Remember you Know how you feel!
Your thyroid test may give false readings!
Ignore the advice that you are within the accepted range; you may need to be at the top or even bottom of the range to feel ok!
Finally research the subject but don't let get bogged down in the jargon and remember it is your body; if you are not happy with your Doctor's or consultant's treatment of your condition you have the right to go elsewhere. When seeing you doctor take someone with you who understands your plight and will fight your corner.
I wish you all the best in getting your health sorted.

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louby83 said on 05 April 2012

i had a total thyroidectomy august last yr and now classed as underactive and take 100mg of thyroxine per day but feel really cold all the time and have noticed my skin has become flaky and dry on my face and my hair is falling out. is this normal? i really dont feel "right" if that makes sense!!! i make myself do the things that need to be done through the day but to honest i wud b quite happy staying in bed. ive been to the doctors a dozen times and they say the same thing-it will get better in time but it is starting to get me down now, how long before i start to feel "normal"??? thanks

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jaguarip said on 15 January 2012

I was diagnosed with hypothyroidism two years ago at the age of 50. The symptoms were incredible tiredness and inability to sleep with constant muscle and joint pains resulting in me falling asleep early and weight gain due to the consequent lack of energy to get out and about outside a fairly sedentary job. I have also had a history of depression and was clinically diagnosed circa 15 years ago when I overworked and suffered too much stress at work resulting in diagnosis and a brilliant course of Dothiepin anti depressants that resolved my depression within a month. This had started to come back. My GP had me tested and my thyroxin levels were substantially below normal limits and my TSH levels ten times what they should have been. I was put on a low dose of Levothyroxine which has had a good effect on my mood and energy levels and I have started sleeping more normally. I was told by my GP that I could have had it for many years and when I look back on my energy levels it may well go back to my teenage years. My brother also has the same condition but is on a much higher dose of the drug Levothyroxin. I never feel 100% but I feel much better than I used to feel. My advice to anybody with similar symptoms is to persevere with your GP and Levothyroxin and life will become more tolerable. I tried to come off the drug recently and the old symptoms returned after a few weeks. It is sad to think I shall always need Levothyroxine but there are worse things in life.

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emmafiford said on 12 January 2012

i have been on throxine for the past 5 year's and my level's are never normal, i'm either taking to much or not enough and it has been this way for 5 yrs my weight goes up and down all the time,which is very frustrating,and i'm constantly tired. i have mentioned this to my doctor and nurse on several occasion's and yet there is nothing being done to help,and when i was taking 200mcg i felt great i had energy i was'nt tired but according to a blood test i was taking far to much, now i'm taking 125mcg, i have no energy again my last bloot test reveled i was not on enough but my doctor did not increase my dose.i'm also now being treated for depression but none of the tablet's i have tried have help and once again my doctor's are not listening.

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User608305 said on 20 October 2011

Was diagnosed with underactive thyroid about 5 months ago currently on 100mcg of thyroxine and am starting to feel awful again,breathless extremely tired depressed and unable to sleep.
Have also been admitted to casualty with ?atrial fibrilation and am now on metoprolol 100mg and feel awful on them and still getting heart palps .
Recent tsh levels suggest low thyroid but gp wont up it till my cardio appt in 5 weeks time! I have two young children and a job I need help.

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hibii said on 16 March 2011

All my blood result levels are sat on the bottom line of normal and some below it.

My GP still doesn't bother doing anything.

Far too often do I hear that sympton is because of that, but nothing happens.

My eyes are that black now, people ask or comment on who beat me up. Even the blood nurses commented and wrote to my Gp and she still did nothing but snarl at me.

NHS stands for No help service.

I've said to my kids, if I die becuse somethings going to give out in me with these symptons, get a through post mortem done. Anything they say, like severe anemia, etc sue my GP and NHS for. won't help me but it might help sombody and make the NHs take notice. Certainly make me laugh in my grave watching my GP being hauled through the coals.

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itsybitsy said on 15 February 2011

i've been on 100mcg thyroxine for about 10 years last year my gp reduced the dose i started to put on more weight...three months later after another blood test he put it back up to what it had been ,,,but i've never lost the weight i gained. now my knees and hips are always aching..and my face is puffy....but according to my gp my thyroid is fine....when i ask him why i feel this way constantly tired ...is it just part of getting older...he just laughs and says...you'll soon feel better....and that's it

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itsybitsy said on 15 February 2011

what are the symptoms of b12 deficiency

itsybitsy

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BecMoz said on 12 July 2010

I have been on thyroxine for about 3 1/2 years now, but for at least 4 years before hand, I kept alternating between overactive and underactive, so the doctors never put me on medication. At the time I originally found out about my thyroid, when I was about 18, I was also told I was going through menopause. It wasn't until recently after looking into complications with underactive thyroids, that I realise my early menopause could have been as a result of this. I had never felt right since starting puberty so the question that always lies in the back of my mind is how long had my thyroid been playing up for and if only I had gone to the doctors earlier, could I have saved my fertility? I have no chance of having children now, nor did I have any chance of having children at the age of 18 years either. If anyone does experience any systems, please, make sure you get checked. You don't want the heartbreak of never being able to conceive to deal with... its hard enough dealing with all the other issues of an under active thyroid. The doctors never tell you this kind of information.

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denise h said on 07 July 2010

hi i was tested for b12 and it came up that i was deficient as well as having an underactive thyroid so i guess its the doctors keep pressing i did

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glynisrose said on 08 December 2009

If it is a known symptom that you can become B12 deficient, why are people not tested for it? It is not an extreme symptom and can happen to any hypothyroid patient so we should all have regular tests to see what our levels are.

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