Scoliosis

  • Overview

Introduction 

Watch this...

Rachel was diagnosed with scoliosis, a curvature of the spine, when she was 11. She describes how it progressed throughout her childhood, the treatments she had and where she found support.

Scoliosis is an abnormal curvature of the spine to one side. In those who have the condition, the spine bends either to the left or to the right.

The bend can occur at any point along the spine from the top to the bottom. The curvature also varies from slight to severe. However, the chest area (thoracic scoliosis) and the lower part of the back (lumbar scoliosis) are the most common regions to be affected.

Who is affected?

Scoliosis affects three to four children out of every 1,000 in the UK. In 90% of cases of scoliosis, treatment is not required because the condition corrects itself as the child grows.

Most of the remaining 10% of cases can be successfully treated by using a back brace to prevent further curvature. Three out of every 1,000 children with scoliosis will need surgical treatment.

Scoliosis can develop at any time during childhood and adolescence. It is more common in girls than boys, most commonly occurring at the start of adolescence.

In approximately 80% of scoliosis cases, the causes are unknown (idiopathic).

Scoliosis is normally not a serious condition, but treatment is essential. Left untreated, the curve of the spine can worsen and cause damage to the spine, chest, pelvis, heart and lungs.

  • show glossary terms
Spine
The spine supports the skeleton, and surrounds and protects the delicate spinal cord and nerves. It is made up of 33 bones called the vertebrae.
Heart
The heart is a muscular organ that pumps blood around the body.
Lungs
Lungs are a pair of organs in the chest that control breathing. They remove carbon dioxide from the blood and replace it with oxygen.

Last reviewed: 15/11/2007

Next review due: 14/11/2009

What are these?

audyd said on 01 February 2010

I am 44 years old and have suffered from lower back ache for 20 years. It has got so bad over the past 7 years. I was referred to a specialist in 2003 who did an x-ray only showing wear and tear they did nothing else and discharged me saying nothing they could do. I live on painkillers every day but they were doing nothing. After 6 years I fought for a MRI scan to be done which resulted in a spinal surgeon saying I had worn discs and referred me to the pain clinic. I decided to go France for a second opinion as I was getting nowhere in this Country will lots of tests I was diagnosed with Lower Lumber Scoliosis with very badly degenerated discs the only solution is for surgery which I am going to France to have as they will not perform this type of surgery in this Country to the extent I need. Trying to get the funding to have the operation in France it has been such a battle but I do intend to have a better quality of life there is not enough people who care in our NHS system down to funding etc. Don't give up if you need help keep looking and pushing as it is your right and this is a serious condition as one person said unless you have it people do not understand the pain we are in.
Good luck to you all.
Audrey

Report this content as offensive or unsuitable

Griffy said on 09 December 2009

I was diagnosed with a scoliosis when I was in my late twenties, only after seeing a chiropractor privately. I had been told for years by many gp's to go home and rest as my back was in spasm. The great news for me is that with the help of a fantastic Chiropractor my condition is managed well enough to only require the odd paracetamol or ibuprofen to manage. It seems costly to pay for this every 6-8 weekis but for me it's worth it to keep mobile and pain free.

Report this content as offensive or unsuitable

ApGcLaRkE said on 26 November 2009

im 14 and have just been diagnosed with a scoliosis in the upper part of my back. i didnt know i had it until i went in to see my doctor about something completely different. I agree that it took a very long time and alot of waiting to get an appointment with a specialist. My parents decided that we would go private so that i could get someone elses opinion and that it would be quicker.My scoliosis is only 31 degrees but they offerrd me lots of differnet treatments including surgery. Im not surre that i want a big rod in back or a massive brace on for ages becaus ethat would be awcward and anoying. i dont really know what to do. and have any of you tried going private?

Report this content as offensive or unsuitable

ApGcLaRkE said on 26 November 2009

im 14 and have just been diagnosed with a scoliosis in the upper part of my back. i didnt know i had it until i went in to see my doctor about something completely different. I agree that it took a very long time and alot of waiting to get an appointment with a specialist. My parents decided that we would go private so that i could get someone elses opinion and that it would be quicker.My scoliosis is only 31 degrees but they offerrd me lots of differnet treatments including surgery. Im not surre that i want a big rod in back or a massive brace on for ages becaus ethat would be awcward and anoying. i dont really know what to do. and have any of you tried going private?

Report this content as offensive or unsuitable

lou_dodd said on 03 November 2009

i started with back problems when i was 10 years old i am now 25 years old and i have been through accupunture, physiotherapy, epidurals and different painkillers several times and whenever i do any of these activites i am often crippled the day after sometimes not even able to get out of a chair!!! so after 15 years and seeing different doctors and consultants i finally got diagnosed with scoliolis 2mths ago and practically got told that theres nothing that can be done til it gets worse and that abit of physio will make it all better and thye decide just to give you more painkillers i dont want painkillers i would just want this to stop all together...i feel so depressed and lonely and let down by the nhs how can when we pay so much nhs insurance whenwe cant get no help for people with this horrible thing, you have people turning round and saying that we've only got a bad back but they have no idea how much pain were in....im so angry with the nhs but i know that if i ask for another opinion im gonna be waiting for mths just to here the same thing over and over again i mean how much pain do they want us to go through til they actually decide to do something....i would pay anything just to have no pain and to be able to stop taking strong painkillers and my back to be right so i cant work normally instead of having to have time off.

this may seem like some kind of rant to people that dont have scoliosis but for people that do i hope you can understand

Report this content as offensive or unsuitable

User360077 said on 28 October 2009

I am 22 and have lumbar scoliosis which was diagnosed by a chiropractor i visited at age 16 after suffering chronic back pain. After visiting my GP for more info i was refered to a specialist outside cardiff to deal with my case. 6 years on, 4 xrays and 2 MRI scans later, and not mention the hundreds of visits to different health care centres, i am left in the lurch. I too waited almost a year to finally get an appointment with my specialist.
I am told my scoliosis is 36 degrees, yet i have been offered no treatment apart from physiotherapy to help straighten my rotated pelvis ( a side effect from my scoliosis ). My rotated rib cage however has been left unmentioned.....Not once have i been offered a back brace, or any such support and i feel really let down by the NHS. I am currently studying Medical Science in University, where i hope to go on to specialise in Orthapedic trauma so i hopefully can make a difference and stop others from feeling sidelined as i do. Now the specialist has told me they have no further need to monitor how my spine progresses, and i am left totally alone to deal with this horrific condition at what i consider to still be a young and delicate age. It affects not only my self confidence but my quality of life as i cannot fully make automous descisions about what i want to do as my condition holds me back. I would urge people to keep questioning all the health care staff they come into contact with, and dont let them sideline your case as they have sidelined mine.

Report this content as offensive or unsuitable

holly_star said on 11 October 2009

I have been off work for 3 months. I hurt my back on duty (i am a care assistant) in a nursing home. I went to my g.p who sent me for an xray at the local hospital. It turns out I have thoracic scoliosis and due to the kind of lifting work I do, put too much pressure on my spine and has made it worse. I am in agonising pain and the pain killers I have been given make me feel very ill.
I have now been waiting 12 weeks to get an appiontment to see a specialist. I think the service is disgusting and I am none the wiser about how my back will be dealt with. Scoliosis is a serious condition but I think only someome that is/has suffered from it would understand that.

Holly shropshire.

Report this content as offensive or unsuitable

beepaul said on 06 October 2009

I agree my daughter has scoliosis and the waiting times to see a consultant is 7 week's!! which i feel is to long.

Report this content as offensive or unsuitable

paolab said on 21 September 2009

I was operated because of scoliosis in Italy more than 20 years ago and have a Harrington rod attached to my spine.
I disagree with your statement that scoliosis is not a serious condition as I believe it must be considered as a priority condition. Many types of scoliosis can cause permanent damage to blood vessels and nerve endings because of the shrinking and degeneration of intervertebral discs.

More work is needed to increase awareness of scoliosis at school so that it can be treated early on.

Paola Bassanese, London.

Report this content as offensive or unsuitable

Find and choose hospitals for scoliosis