Raynaud's disease 

Introduction 

In Raynaud's the blood flow to the hands is restricted, which makes the fingers cold and white 

Very cold weather

Ways to keep warm and look after vulnerable people if the weather turns extremely cold

Raynaud’s disease is a common condition that affects the blood supply to certain parts of the body, usually the fingers and toes.

You may have heard of it referred to as Raynaud’s syndrome, Raynaud’s phenomenon or just Raynaud's.

Why does it happen?

The condition occurs because your blood vessels go into a temporary spasm which blocks the flow of blood. This causes the affected area to change colour to white, then blue and then finally red as the blood flow returns.

You may also experience pain, numbness and pins and needles in the affected body parts. Symptoms can last from a few minutes to several hours.

Raynaud’s is usually triggered by cold temperatures or by anxiety or stress.

It is not a serious threat to your health but it can be annoying to live with. People with Raynaud’s often go for long periods without any symptoms and sometimes the condition goes away altogether.

Read more about the symptoms of Raynaud’s.

Treatment

In many cases it may be possible to control the symptoms of Raynaud’s using self-care techniques such as avoiding the cold, wearing gloves and using relaxation techniques when feeling stressed.

Quitting smoking can also help improve symptoms, as smoking can affect your circulation.

If the above does not help with the symptoms, then a medication called nifedipine has proved effective with some people.

Read more about the treatment of Raynaud’s.

Types of Raynaud's

There are two types of Raynaud's. It can either be:

  • primary: when the condition develops by itself (this is the most common type)
  • secondary: when it develops in association with another health condition

The causes of primary Raynaud’s are unclear. However 1 in 10 people with primary Raynaud’s will go on to develop a condition associated with secondary Raynaud’s such as lupus.

Most cases of secondary Raynaud’s are associated with conditions where the immune system goes wrong and starts attacking healthy tissue, such as:

  • rheumatoid arthritis: when the immune system attacks the joints causing pain and swelling
  • lupus: when the immune system attacks many different parts of the body causing a range of symptoms, such as tiredness, joint pain and skin rashes

Read more about what causes Raynaud’s.

Secondary Raynaud’s can cause a more severe restriction of blood supply so it does carry a higher risk of causing complications such as ulcers, scarring and in the most serious of cases of tissue death, which is known as gangrene.

Read more about the complications of Raynaud’s.

Who gets Raynaud’s?

Raynaud’s disease is a common condition. It may affect as many as one in every nine women and 1 in every 12 men. (It is hard to be entirely sure as rates can differ widely from area to area depending on how cold the temperature is).

Primary Raynaud’s usually begins in your 20s or 30s. Secondary Raynaud’s can develop at any age depending on the underlying condition it is associated with.

  • show glossary terms

Blood vessels

Blood vessels are the tubes in which blood travels to and from parts of the body. The three main types of blood vessels are veins, arteries and capillaries.  

Numbness

Numbness is a lack of sensation in a part of the body.  

Disease

A disease is an illness or condition that interferes with normal body functions.

 

Last reviewed: 18/05/2011

Next review due: 18/05/2013

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loz_27 said on 16 December 2011

When I was 14 I was diagnosed with raynauds. I'm now 16, and each year is getting worse. Not only my hands and feet but my knees, elbows and sometimes my legs suffer quite bad. Its affects me everyday and ruins alot of plans. The pain is unexplainable and goes on for hours after I return inside. Sometimes I have to use crutches because of it. I was wondering if there's another medicine besides nifedepin I can take? Thanks

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Alexandervander said on 25 November 2011

I have been getting pains in my hands and feet since I was a little boy. I have been to countless doctors, who all never knew what was wrong with me. From the picture it looks like I do not have Raynauds disease, but from the description it sounds like I do.

I have been to my G.P recently and he said that the aches and pains and due to my mental state, I have depression. I notice before I get the burning/tingling sensation in my hands and feet, they do change colour, and always end up red, splotchy and swollen. It is a really uncomfortable feeling, and can last a long time. Keeping my legs moving does tend to help, and taking a paracutamol. It is embarrasing to say, but some times I get the same burning sensation in my groin area too. I belive I could have Raynauds, and Im going to see my G.P about it on Monday.

Luckily I found out about this site because I couldnt take not knowing what is wrong with me anymore, and phoned NHS Direct. The people I spoke to where very helpfull, and I feel a lot better now with some direction. Thank You for all Your help, I hope this leads to me becoming a healthier individual.

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songofserenity said on 18 November 2011

I've now been told I have Raynauds, I'm 39 a mum and carer. Ive been getting symptoms for the last 12 months, my fingers on both hands go bone white and numb and unless I try and warm them up will stay that way for upto 30 minutes. The quickest way I have found of getting blood flowing properly again is filling a sink full of hot water and then putting rubber gloves on before submerging my hands in the gloves into the hot water, t can still take up to 5 minutes for the fingers to return to a healthy pink colour but at least then they dont hurt and I can undertake normal activities again.I know it affects my feet as well but I dont take my shoes and socks of to check them.
The doc and I think its my weight loss that has contributed to symptoms developing,losing 10 stone of extra insulation has meant I now feel symptoms that may previously have been masked by the extra layers of fat. I'm worried about taking the Nefidapine because another effect of the weight loss is my BP being round the 110/68 mark and I'm concerned that the Nefidipine(as a drug also used to treat high blood pressure) will make mine lower further than it already is.

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EllieRose93 said on 03 August 2011

Hi Meg jayne, unfortunately this appears to be a disease that those who have it just have to try live with. I was diagnosed with Raynaurds at 13 and to be honest each winter it seems to get just a little bit worse.
One of the most annoying things is every time you go to the drs or to see a professor about it they constantly tell you to wear gloves and stay warm, as if we don't try to do that already!
By the way ask for a blood test because if it's secondary Raynaurds they can pick it up in your results :). Ive also been prescribed nifedipine but it didn't have any effect for me and actually made me very nauseous. However I've heard good things about it so I'd suggest asking to give it a go.
As for the boys lord knows I stressed out about that too, but if theyre worth it then they won't care :) sounds cheesy I know. Also I'd advise trying to make a joke out of it, helped me relax around guys as it didn't seem to bother them when I joked about it.
Just finished my a levels and the only thing I can suggest is getting permission to wait inside before going into exams, as when they got cold my fingers take quite a while to heat up and time is obviously very precious in exams. Another thing, the professor I see every month or so (due to suspected secondary raynaurds) has suggested several times going to see a councillor. At first I was a bit surprised as I don't have any huge issues in my life but actually talking about all the little stuff did help releave some of my stress, making my raynaurds a little less severe :) you can get councilling through the NHS so it wouldn't cost a penny.
Anyway, good luck and if you have any more questions post them on here and I'll get back to you, hope thise helped :) Ellie.

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meg jayne said on 18 July 2011

I am 15 and have just been diagnosed with Primary Raynauds and am awaiting blood test results to see if there is a possibility of me having Secondary Raynauds. It's frustrating as I have had some symptoms such as constantly very cold hands and feet for nearly 2 years and more recently my fingers and toes have turned very white and tingly due to a small change of temperature. As I am reasonably young and have had numerous medical problems the best advice I was given was to wear gloves and socks when my hands are cold. The problem is, only in very very warm conditions and when I have been sitting on my hands for about half an hour are my hands warm/ normal temperature. Am I supposed to wear gloves forever?
Raynauds hasn't seemed to affect my life that much yet but it is embarrassing having to explain to boys why my hands are so cold... I was wondering, anyone have any advice on the keeping the stress levels down. I've realised that my hands get worse when I'm stressed (stress has been linked to Raynauds) and what with my A-levels coming up next year I could do with some tips. Any tips would be really helpful

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venusianqueen said on 27 May 2011

I've had Raynaud's since I was about 14 (I'm now 23). It affects both my hands and feet, with the typical colour changes, and my fingernails are typically always blue. It has progressed massively over the years, going from just being cold, to extreme pain and difficulty manipulating things. I find it's brought on by stress as well as the cold. I too struggle in the supermarket and avoid the fridge/freezer departments!
I tried ginkgo biloba but found it ineffective. What are people's experiences with Nifedipine?
I see other people mention that they get weakness and pain in their arms. I'm finding I'm getting that too over the last year. My left arm sometimes feels like I've got a tourniquet around my elbow.
The cold is getting so bad now that my ankles become freezing too, and I ache all over because I find I tense up - ribs are the worst!
I've also experienced the dizziness and vertigo (and also tinnitis). I was prescribed medication for Meniere's disease, but I can't help but wonder if there's some connection if others are experiencing it too?
I can't gain weight, I'm built like wire coathangers, and I wonder if this is because my metabolism has increased as my body's trying to keep me warm. I dunno.
All I can say is no one understands the condition unless they have it. I'm the girl in the nightclub with a jacket and gloves hidden in my bag. I feel 80 when I'm only 23. It saddens me to know that I'm stuck with it

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doray said on 26 April 2011

I have suffered with Raynard's since I was 18 yrs old. However, when I fell down because I couln#t feel my feet one day in 1978, my husband took me to a consultant in Harley Street .I was duly operated on and had a Lumbar sypmathectomy which gave me 20yrs of godd active life without pain. Unfortunatley it has slowly returned .but you learn to live with it . Hope this can help anyone out there

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cubalibra said on 17 March 2011

my mrs has just been diagnosed with raynauds disease
she is also a celiac and has osteopinia with her problems compounding is there help available and does anyone know whether you can claim disability allowance or mobility ect

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k4thybrown said on 04 March 2011

Interesting. I came to look on here as my Raynaud's has been getting worse - used to be just one or two fingertips. Now both hands/nearly the whole fingers. And some pain too. It's got to the point where shopping in Sainsbury's is a trial - the air temp is cool and the chilled section always makes me numb. Toes too. Haven't been to the doctor yet, I thought it was 'just one of those things'. I am particularly interested in others mentioning low blood pressure and dizziness on rising. I have that too.

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k4thybrown said on 04 March 2011

Interesting. I came to look on here as my Raynaud's has been getting worse - used to be just one or two fingertips. Now both hands/nearly the whole fingers. And some pain too. It's got to the point where shopping in Sainsbury's is a trial - the air temp is cool and the chilled section always makes me numb. Toes too. Haven't been to the doctor yet, I thought it was 'just one of those things'. I am particularly interested in others mentioning low blood pressure and dizziness on rising. I have that too.

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enilorac said on 19 February 2011

@ carolinewilliams5 said on 10 February 2010
My fingers go exactly the same as your daughters.
They also go hot where they swell & the fingers feel like they could burst if you sick a pin in them.
I also get the same feeling in some toes & also in some places under my feet but I do have arthritis in my neck which cause pins & needles down my spine,arms & legs. I am waiting for the results of the teasts I had to go through a couple of weeks ago with a Rhuematologist.

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Tanya32 said on 07 December 2010

I was Diagnosed with Raynauds a couple of years ago and was put on Nifedipine but with me its not the cold that triggers it things like standing up and just getting out of bed I have attacks just about everyday and sometime up to for times a day but it never affects both my hands at the same time its either1 or 2 fingers on 1 hand or sometimes all my fingers I have notice recently its becoming more and more frequent and starting to affect parts of me that I did not think would be affected but the 1 that's been warring me is now its only happened twice about a month ago and yesterday can anyone tell me if they have ever had Raynauds affect their tongue I have never heard of it doing it I only knew cos my tongue felt a little strange and when I had a look in the mirror about a CM at the end of my tongue was white can anyone please help me with this also my attacks have started lasting a lot longer than normal

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Peeblesshire said on 12 November 2010

I wonder if any association is known of (or suspected) between Raynaud syndrome with sarcoidosis?

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robeeert said on 21 October 2010

I suffer from raynauds disease, in the middle of summer I often have to put the heater on. could I claim an extra heating allowance. ?

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SweetChili said on 11 March 2010

Raynauds can appear on it's own (primary) but can also indicate more serious problems such as Rheumatoid athritis, Fibromyalgia or worse..Scleroderma! you should always push your doctor to see a specialist (Rheumatologist) if you are having other symptoms too!

I have Raynauds as well as severe 'systemic' (internal organ) problems, I also have Fibromyalgia.

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unknown2010 said on 17 February 2010

I have just been diagnosed with Raynaud's I too had sweats in the night and symptoms of vertigo last week on rising and was concerned about low blood pressure as I had a feeling that I was going to pass out. But when I visited my doctor was told that this due to a virus. I have also been experiencing weakness in my left arm and some pain. I would be very interested to hear how you get on

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carolinewilliams5 said on 10 February 2010

my daughter suffers with some of these symptoms but the last couple of days the ends of her fingers are going purle/black can some one let me know if that happens with raynaud's ,i,m waiting for a gp appointment to have her tested for it thanks xx

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mijoch01 said on 05 January 2010

Whilst I suffer the same affects as anyone with RP I am more interested in how it comes about.
I have always felt that a link exists with the autonomic nervous system and this system is somehow compromised.
I also have been found to have low blood pressure eg 100/60mmhg on numerous occassions which without warning can jump to as high as 180/100.
Night sweats that can soak the bed, vertigo on rising,
mood swings, and have suffered manic depression which fortunately I overcame or it resolved itself a good few years ago. I would like to help research this problem .Can you help direct me to this end?

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neptune said on 01 December 2009

I have just been diagnosed with Raynaud but also have some other symptoms that are of concern. I have significant weakness in my right arm, constant fatigue and spells of dizziness, as well as extremely cold hands feet and area under my nose, hands turn red white and blue. When they turn white they are the most painful, my feet also turn white and can be very painful.
I am wondering if any of these can be related to secondry Raynauds, my GP has referred me to a neurologist which I see in January 2010.

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