Narcolepsy - Symptoms 

Symptoms of narcolepsy 

The symptoms of narcolepsy can vary from person to person. Some people have very frequent symptoms, while others are less frequently affected.

Daytime sleepiness

In most cases of narcolepsy, daytime sleepiness is the first symptom to appear. It is often the most debilitating symptom. 

If you have daytime sleepiness, you will feel drowsy throughout the day and have difficulty staying awake.

Sleep attacks

Falling asleep suddenly and without warning, known as a ‘sleep attack’, is a common symptom of narcolepsy.

You may have a sudden sleep attack after eating, although they can occur at any time. During a sleep attack, you fall asleep for around 15 minutes before waking up feeling alert and refreshed.

The length of time that a sleep attack can last for will vary from person to person, and they can occur several times a day.

Other symptoms

As well as daytime sleepiness and sleep attacks, narcolepsy can cause a variety of other symptoms including:

  • temporary muscle paralysis (being unable to speak or move) when falling asleep or waking up
  • hallucinations – seeing or hearing things that are not real
  • difficulty concentrating
  • restless night time sleep – for example, having hot flushes, waking up frequently, having vivid nightmares and physically acting out your dreams
  • automatic behaviour – when you continue to carry out normal activities, such as talking or moving around, while you are still asleep

Cataplexy

About 75% of people who have narcolepsy also experience cataplexy. Cataplexy is a condition that causes sudden, but temporary, muscle weakness or a loss of muscular control. For example, during a cataplexy attack, you may find that:

  • your jaw drops
  • your head slumps down
  • your legs collapse uncontrollably
  • your speech is slurred

Cataplexy attacks are usually triggered by an emotion, such as excitement, laughter or fear. The attacks may last for a few seconds or they may continue for several minutes. Some people with narcolepsy have cataplexy attacks once or twice a year, while others have them several times a day. The symptoms of cataplexy can sometimes improve with age.

Last reviewed: 28/05/2010

Next review due: 28/05/2012

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Seviyorumcok said on 23 August 2010

This is the continuation from the script I have just written/.......................

Where was I? Ah yes! My eating is now of bread and butter or biscuits with a cup of tea! Not very healthy I know but I really don't want to set fire to my home by my excessive sleeping whilst cooking, besides I don't think I have anymore saucepans left to cook in.

As I am typing this I want to go to sleep so much, my head keeps dropping so I do think I best get off from my computer so I can go back to sleep.

Thank you for reading my 2 scripts on excessive sleeping. I would love to hear from ANYONE who can help me - thank you!

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Seviyorumcok said on 23 August 2010

At last I feel I have found what is wrong with me I am suffering from Narcoplexy and Cataplexy. The onset of my condition has come on gradually over the last 4 years but recently it has become so bad my quality of life is now ZILCH! I have mentioned my excessive sleeping to my GP who doesn't remark on it, I have mentioned it to a young woman Dr in hospital who said it's probably my tablets. But I know it's not my tablets as I have been on them now for 7 years, the 3 years before my excessive sleeping started were great. My quality of life is very bad and yet I can't seem to get the help I desperately need. It is now putting me in danger, not only have I fallen asleep whilst sat on my loo for 2.1/2hrs (yes I know it sounds funny) but I have fallen asleep at my computer and woke up with the key indentations on my forehead. The most scary part is when I fall asleep whilst cooking! I have set my fire alarm off on 7 occassions , I have had to throw out 5 saucepans. I have fallen asleep with a cigarette in my hand and ended up burning my rug 3 times now! I firmly believe I am going to die in a house fire caused by my excessive sleeping. But what do I do and where do I go for help if my GP ignores me? Can anyone help me? My daughter seems to think my being exposed to Carbon Monoxide over a 2 yr period might have something to do with my excessive sleeping. It's just a good job I sleep with my windows open otherwise I don't think I would be here right now, The CO was spilling from my kitchen boiler, the hsg assoc who owns my property have now corrected it but when I put it to them it may be the cause of my excessive sleeping they are not owning up to it and have now brushed it under the carpet. Is there anyone out there who could help me??? I am a woman 57yrs next week and yet I feel like a woman of 90yrs! It is affecting every area of my life, even my hygeine as I am now far too tired to even shower daily! I try now to avoid cooking so therefore my diet is also rubbish too

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narcoleptic said on 31 March 2010

Re Symptoms during cataplexy attacks:

Loss of voluntary muscle tone. Cannot speak, move or see but can hear and is aware of surroundings. Severe or prolonged cataplexy attacks develop into REM sleep.

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narcoleptic said on 05 November 2009

Re Symptoms:
Racing heart/palpitations on falling asleep and during sleep.

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