Irritable bowel syndrome - Real stories 

'I've found the wheat-free ranges at the supermarket very helpful' 

IBS: Ansar's story

Ansar Ahmed Ullah has had irritable bowel syndrome (IBS) for more than 20 years. He explains how he's finally learning to live with the condition.

After having IBS for more than 20 years, Ansar Ahmed Ullah is learning to live with the condition.

"I think my IBS came from too many curries!" says Ansar Ahmed Ullah. He first came to London in the early 1980s. Living in shared accommodation, he relied on spicy takeaways for his main meal in the evening. "We'd also go to the community centre at lunchtime, where they served curry and rice," he remembers.

In the mid-1980s, Ansar started to suffer from frequent constipation, bloating, occasional diarrhoea and stomach pain. On one occasion, the pain was so bad that he was rushed to hospital. "I was there for a week," he remembers. "The doctors gave me all kinds of tests. They thought I might have a stomach ulcer, but they didn't find anything."

Eventually, Ansar spoke to his GP, who diagnosed IBS. He was prescribed painkillers and a muscle relaxant drug to ease his constipation. Unfortunately, neither drug was effective. Ansar decided to try to treat himself.

He joined the IBS Network to learn about his condition. He had several food allergy tests and discovered that he was sensitive to wheat, spicy food and dairy products.

"Luckily, I'm still able to eat chicken and fish," he says. "Avoiding dairy and wheat is very difficult. I love milk in my tea. I've never been able to stand the taste of soya, and I love bread and biscuits. I've found the wheat-free ranges at the supermarkets very helpful, though."

Ansar says he's tried every IBS remedy on the market. "I've more or less resigned myself to the fact that I'm not going to be cured of IBS," he says. "But it can be very difficult.

"The mornings are the worst. When I was employed, I was constantly late because I had to spend so long in the toilet with constipation. There's not a lot of awareness of IBS, particularly among young people, so it's hard for people to understand what you're going through."

Ansar says IBS also affects his relationship with his partner. "She does sometimes get annoyed when she needs to go somewhere in a hurry and I'm still in the toilet. It's also very awkward when you're out and about and you need to use a loo suddenly or for a long period of time. The IBS is in the back of my mind all the time. I have to consider it when I go anywhere or do anything."

However, Ansar tries not to let his IBS get him down. "I do my best to stick to my wheat-free diet and I make sure I eat plenty of fruit. I've found that really helps the constipation. I'm also planning to take more exercise. I already go to Pilates classes and I've got a bike, which I should really use more! I think I'm learning to live with my IBS."

Last reviewed: 12/09/2012

Next review due: 12/09/2014

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davemo said on 18 July 2012

I am a practicing hypnotherapist and decided to specialise in the treatment of IBS as my mother suffered from Ulcerative Colitis with addional symptoms which the doctor suspected were IBS related.
She has always been a anxious person and her symptoms seemed to be related to her mood.
Having studied at the only NHS funded IBS Hypnotherapy centre in England. I was suprised to learn the following:
Hypnotherapy is recommended in the NICE guidelines for the treatment of IBS
That Improvement rates as proven over time from studies carried out within the NHS show improvement in approx. 90% of cases
A consultant at Withenshaw hospital who has worked in this area for about 30 years is currently recruiting for addional clinical trials.
IBS is designated as a functional disorder meaning that although there might have been a trigger event, there is no cure - unless you learn to manage your emotions and reduce your levels of stress.
What I don't understand is why is this simple and effective treatment being held back from the many who wight benefit from it?
All of my clients have made tremendous improvements including one IBS sufferer who has had the disorder for 36 years and (in her case) after 1 hour of hypnosis, made a dramatic and life changing improvement.

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TraceyRevill said on 26 January 2012

I have suffered with IBS for over 12 years and have tried all the medication doctors can prescribe and non have worked. When I saw my consultant he suggested Aloe Vera tablets which I tried and to this day still take. They certainly help and to prove it to myself that I wasn't just hoping, when I finished the bottle of tablets I had I didn't get another bottle for a week and within that week I was in agony again, this happened to me twice and now I am never without my Aloe Vera. I still get the occasional flare-up and when I do I take Buscopan which seems to help. But I will never be without my Aloe Vera tablets ever again, they certainly do help.

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cleosmum said on 17 January 2012

I've just been diagnosed with IBS but I have the type that gives me terrible diarrhea which I've been suffering from for about 6 months now. I just had the worst Christmas because I felt so ill and spent large amounts of time in the loo - not really great when you're with your in-laws though they are very kind and understanding.

My biggest worry is being stuck on a plane or in the car and I'll get an attack and need to go. Becuase when I need to go, I need to go - there's no trying to hang on. My doctor has suggested taking something like Immodium before going on trips on being somewhere where I know I can't get to the loo, like in the middle of a golf course. I'd be interested to hear what other people have been advised in this situation.

Fortunately I haven't been so bad as needing to be hospitalised; that must be very worrying but I'm now rethinking my whole diet (I'm a vegetarian which doesn't help much!) and doing loads of research to see what else I can do.

I was really worried to begin with as my mum died from colon cancer and I wondered if I had the same so though this isn't pleasant, I'm sure I can deal with it knowing that it isn't life threatening - just life irritating.

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xemxmax said on 04 January 2012

i agree with you ..im very anxious person an i have ibs.. i worry too much..i'e recently been the docotrs, as its come back really bad like a stitch pain on my right side..so i was given muscle relaxers for my stomach.. i've only recently been taking them so i'll have to see how it goes.. i might also give cutting out wheat out of my diet ago, to see if that helps, as i dont have dairy anyway(makes my skin bad).

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jademilky said on 13 August 2011

wow thanks for that, It is interesting to know that men suffer too as I have only ever heard of women who suffer. I too have been hospitalised for it and when they diagnosed me with IBS I was convinced they were fobbing me off and thinking I was a hypochondriac but a course of SSRI anti deps really helped. Until 8 years later that is. I am on different SSRIs as I suffer panic disorder and recently had a breakdown...now all of a sudden it is back with a vengeance! I have had constant diarrhoea for four weeks. I even had to get my mother in law to look after my kids one day as I thought I had a bug and was soooo rough. I had my sample results back from doc and they could find no bugs/food poisoning in it. I did my own research as I hate hospitals and get panicky giong away from home, so I don't want any invasive tests. And all the symptoms point to IBS... which makes sense as I had it really bad all those years ago.

As I am an anxious person anyway (I am neurotic about most things! wish I wasn't but hey I am on waiting list for CBT) so think there is deffo a link between IBS and anxiety. Has anyone else found this?

This was useful, thanks so much for sharing your story.

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