Autism and Asperger syndrome - Adults with autism 

Adults living with autism 

Finding a job

It can be difficult for people with ASD to find a job. For example, they may find the work environment too noisy, or travelling to work too stressful because of the crowds. Sudden changes in routine can be upsetting.

However, in the right job and with the right support, people with ASD have much to offer. They are often accurate, reliable and have a good eye for detail. Being in a working environment can help the individual's personal development tremendously.

Some people will need their working environment to be adapted for them. It is important to match someone's skills to the right job and offer ongoing support. See the National Autistic Society website to find help with getting a job.

Some people with autistic spectrum disorder (ASD) grow up without their condition being recognised, sometimes through choice. However, once diagnosed, adults may access a range of autism services, such as social groups that may be available locally.

Adults with ASD will need to consider where they'd like to live, and whether they might need any support at home.

It is never too late to be diagnosed with ASD, although it is not always easy as some primary care trusts (PCTs) do not provide NHS funding for diagnosing ASD in adults.

Read more information about diagnosing autistic spectrum disorder (ASD) in adults or see the National Autistic Society website for a range of diagnosis information for adults.

Where to live

Adults with ASD can live in all types of housing. For example, some people may be suited to a residential care home, while others may prefer to live on their own and receive home support. Others live completely independently.

Supported living can work very well for some adults with ASD. They can choose a place to live in the community, they can live alone or with other people, and get the support they need. They may need 24-hour care, or they may only need help with important tasks for a couple of hours each week.

Some adults with ASD may not want to move out of the family home. A 2001 survey by the National Autistic Society found that half of adults with ASD still lived with their parents. Caring for anyone with a disability can be challenging, and parents may need additional support. For more information, see the Carers Direct practical guide to caring.

Respite care is short-term care provided either in or outside the family home. It is funded by the local authority and gives families and carers of people with ASD a break from their daily care routine.

Read more information about breaks from caring.

The level of support an adult with ASD needs (from round-the-clock care to simple adaptations to the home) is decided after social services make an assessment and it is agreed with the person and their carer.

Access in the community

Community support services (or outreach services) help adults with ASD get out and about in their local area. They provide advice, support, social skills training and social or leisure opportunities.

For example, they may help people with ASD to get to the local gym for a couple of hours a week, to keep fit and healthy.

Find autism support services in your area.

Last reviewed: 02/03/2012

Next review due: 02/03/2014

Comments are personal views. Any information they give has not been checked and may not be accurate.

zone_tripper said on 20 December 2011

I cannot speak for others, but my own local mental health trust (Kent and Medway NHS and Social Care Partnership Trust) did offer me psychotherapy for anxiety and depression. Based on what I said in those sessions, the psychotherapist suggested that I might have Asperger Syndrome. I was then referred to a psychiatrist, who made a more formal diagnosis. I was then given a report of my assessment. It did not cost me a penny to get diagnosed, as diagnosis was provided free of charge by Kent and Medway NHS and SCPT.

Since then, I have also learnt of Dyspraxia and it seems that I have that as well. (I also have an elderly uncle who is autistic.)

I believe that diagnosis of ASD and related developmental disorders is patchy around the country, but it is improving since the Autism Act was pased in 2009

If anybody is experiencing difficulty getting diagnosed, I would recommend contacting your local NHS Mental Health Trust and ask if diagnosis is available. If so, you may be able to self refer or ask your GP to refer you. Likewise, the National Autistic Society may be able to offer help and advice.

When the PCTs cease to exist, your local GPs (in consortium) will be the ones who dictate how the local NHS budget is spent.

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autismadult said on 26 June 2011

i went to the doctors with my soon to be ex wife to discuss my situation and he was fairly suportive and agreed to try and help me, he wasnt sure who to contact or where to turn but eventually found the right people.

after 2months i recieved a letter saying i would require £2000 to get tested for aspergers i cant remember who the letter was from i think it was a so called aspergers expert .....

i went back to my GP and he said he would contact a psychiatrist and see if they could help and the psychiatrist agreed i needed to be seen by someone , around 5 months past and i didnt hear anything until one day i recieved a letter saying i had an apointment with a mental health assemesement team it didnt say why.

i am still waiting for a letter which i assume with be a detailed report

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kenorb said on 07 June 2011

shabutie: you've right, no diagnostics services for adults in London!

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shabutie said on 05 May 2011

"but it's never too late to be diagnosed" - hah, not if no services exist in your area (the entire West Midlands) and your mental health PCT therefore declares that autism spectrum disorders do not exist in adults. I've been trying to get assessed for 3 years now.

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